IT'S MINDBODY, NOT MIND-BODY

Last week I was interviewed by Steve Higgs of The Bloomington Alternative. We met for about three hours and talked about Biomedical Interventions for Autism, and about environmental toxins. Mr. Higgs is especially interested in the role of toxins here in the state of Indiana, and how our unique environment impacts the children in this state (and those beyond our borders).

Last night I couldn't sleep. So I got up and fired off a few emails to Mr. Higgs, including copies of some PowerPoint Presentations I gave in April of this year. Among them was a presentation I put together in which I researched some of the specific toxins we have in abundance, here in Southwestern Indiana.

This morning I received an email from Mr. Higgs, with a few questions. Among them was the question of what to call those who seek out my services. Patients? Clients? and how to refer to their diagnoses: ASD?

The result of that email turned into a lengthy response, which I think makes a good blog post, so here it is:

As far as what to call those who seek my services...clients is more appropriate, I think. I wish I had given you one of my business cards. The tag I use on them (and my "letterhead") is "Family Coaching for Fragile Children." I work with kids (and adults) who have received any number of diagnoses, from chronic fatigue and fibromyalgia in adults to autism, bipolar disorder, ADHD, and Learning Disabilities in kids.

I was thinking about this a lot last night/this morning, and feeling so discouraged because there is SO MUCH to do and often feels like only me to do it.

I had another parent email and call yesterday, with questions about how to get her physician to order the labs we need. This is a 17 year-old with chronic GI pain, upper respiratory infections, strep, bronchitis, etc. (immune system dysfunction) since infancy. At 17, he now has pre-cancerous lesions in his gastroinstinal tract and the parents have been told that things will probably not ever get better for him; he'll just have to learn to live with the pain. The primary care physician has seen this kid probably 100 times in the last 12-13 years and has made numerous referrals to other specialists (GI docs, allergists, therapists, etc.). He has also collected many thousands of dollars from the family and their insurance company over that time. I saw this kid and spent more than 50 hours going over his medical records, abstracting them, putting everything in chronological order, researching and documenting everything that had happened to him since conception. I also spent about 5 hours with the family (and drove almost four hours round-trip to do so). When I wrote up the report, I did it in such a way that everything flowed and made sense. It was this kid's life story. The reason I did this was to be sure to make the case for the doctor, so he would understand the rationale behind what I was asking him to do. He had no problem with it. Said he would order the tests. However, he will not take the time to pick up the phone and call (or have his staff call) the labs to request the test kits. I even provided interactive links and telephone numbers at the end of the report, to make things as simple as possible. All it would take is five minutes and unfortunately, that's something he or his staff has to do. I can't order the kits and neither can the parents. (There are some labs - Great Plains, for example, that make this process much easier by allowing parents to order kits and take them to the doctor for his/her signature. Others are not as user-friendly, but the information provided by the labs is worth the effort, in my opinion.)

This is the most frustrating thing for me. Even when they finally begin to see why this makes sense, it's like pulling teeth to get physicians to change the way they do things. I don't think I explained this blatantly in my powerpoint about Biomedical Interventions, but this is why I talked about the two doctors (Marshall & Warren) who discovered H. pylori bacteria and its role in ulcers. They made the discovery in 1982 and it wasn't until 1995 that "Standard Medical Practice" finally changed from the mantra of "stress causes ulcers" to recognizing that if a bacterial infection was the cause, then it makes sense to treat with an antibiotic. As a result of the extremely slow awakening of the medical community, hundreds of thousands (millions?) of people suffered with ulcers that could have easily been treated. It took 13 years for them to wake up. How many children will we lose in 13 years? (This may be a good time to read the first post on my blog: AUTISM IS TREATABLE)

When we talk about biomedical interventions for autism and other "spectrum disorders" like ADHD, Learning Disabilities, Asperger's, PDD-NOS, bipolar disorder, etc., we are talking about a "whole-body" affliction. That's the major problem with why the medical community is not "on-board." This is completely the opposite of what medical schools have taught for the last few generations, at least. The medical system has moved almost exclusively to specialty care, where you see one doctor for your feet, another doctor for your gut, another doctor for your ears, another doctor for the fungus under your nails, and another doctor for your "mental" or "cognitive" difficulties. Each one sees only a part of the patient, rather than looking at the entire person. The biomedical approach to autism (and other whole-body afflictions) is a systems approach that emphasizes the fact that there is no such thing as mind-body. It's mindbody. All one child; all one word. There is nothing physicially separating the mind from the rest of the body and we need to stop treating our children as if they have been decapitated. What happens in the body affects the brain and vice-versa. This is another reason why the impact of environmental toxins is so important to consider. Lead, mercury, and other heavy metals negatively impact the entire body by damaging enzymatic processes. They cause disruption everywhere. Until we start assessing and addressing the damage caused by environmental toxins, everything else we do is just bandaids.

Marci

SUCCESS RATES FOR BIOMEDICAL TREATMENT OF AUTISM

The success rate experienced by families who undertake a biomedical approach for autism is often excellent, for those who stick with it. A major problem is that by the time people hear about Biomedical interventions for Autism, they have been convinced by their pediatrician or family doctor that there is nothing that can be done for autism, and since we live in a society that tends to value a physician's word as being on par with "the word of God" this can be a big hurdle to overcome.

A related problem is that most traditionally-trained physicians are not taught about nutrition or methods of disease prevention. They are taught to suppress symptoms with pharmaceutical drugs and to remove body parts when they decay or stop working - often because the symptoms of underlying disease are masked with pharmaceutical drugs while things continue to get worse.

Physicians and clinicians who employ biomedical treatments for autism (and ADHD, ADD, Bipolar Disorder, Chronic Fatigue, Fibromyalgia, etc.) subscribe to the belief that the most important thing is "FIRST, DO NO HARM." As is the case when considering any kind of intervention, we must ask ourselves if any risks associated are greater than any potential benefit that may come from taking the particular course of action. This is referred to as a “cost/benefit analysis.” In any cost/benefit analysis, you want to make decisions where the potential benefit outweighs the potential cost. I believe this is especially true when considering a treatment approach for a sick child.

The Autism Research Institute has been collecting data from parents for several years, regarding the success rates of various interventions, both biomedical and pharmaceutical. To view the complete list of parent ratings for biomedical and pharmaceutical interventions, click the following link: http://www.autism.com/treatable/form34qr.htm

Data from more than 26 thousand of parents indicates that biomedical interventions, such as dietary changes, antifungals, targeted supplementation with specific vitamins, minerals, amino acids, enzymes, and probiotics, and chelation therapy to remove heavy metals, organophosphates, and pesticides, are many times more successful than treatment with psychotropic medications AND they are far less likely to cause negative reactions in the children.

For example, Adderall, Ritalin, and Risperdal are three of the most frequently prescribed medications given to children with autism to help control behavior (suppress symptoms). Parent ratings regarding the success rates for these medications are as follows:

Adderall: of 775 cases, 43% got worse; 32% got better; 25% no effect.
Adderall: Better:Worse Ratio = 0.8:1

Ritalin: of 4127 cases, 45% got worse; 29% got better; 26% no effect.
Ritalin: Better:Worse Ratio = 0.7:1

Risperdal: of 1038 cases, 20% got worse; 54% got better; 26% no effect.
Risperdal: Better:Worse Ratio = 2.8:1

Note: "got worse" in these parental reports relates solely to the worsening of problematic behaviors. To read further information regarding potential side effects of these and other psychotropic medications click the following link:
http://www.autism.com/ari/adverse_reactions.html

Constipation and diarrhea are rampant in a vast majority of kids with autism, as are problems with eczema, skin rashes, and environmental and dietary allergies. Because 70% of the body’s immune system is located in the gastrointestinal tract, problems related to GI injury and inflammation are often the source of a domino-like cascade of issues as the child becomes immune-compromised and increasingly susceptible to bacterial, viral, and parasitic infections.

Dietary changes often help to correct issues in the gut and are therefore frequently targeted initially in biomedical treatments for autism. Parent ratings regarding the success of dietary interventions are as follows:

Remove Milk/Dairy: of 6360 cases, 2% got worse; 52% got better; 46% no effect.
Remove Milk/Dairy: Better:Worse Ratio: 32:1

Remove Wheat: of 3774 cases, 2% got worse; 51% got better; 47% no effect
Remove Wheat: Better:Worse Ratio: 28:1

Gluten Free/Casein Free Diet: of 2561 cases, 3% got worse; 66% got better; 31% no effect
GF/CF Diet: Better:Worse Ratio: 19:1

Candida Diet (Yeast-Free): of 941 cases, 3% got worse; 56% got better; 41% no effect
GF/CF Diet: Better:Worse Ratio: 19:1

Food Allergy Treatment: of 952 cases, 3% got worse; 64% got better; 33% no effect
Food Allergy Treatment: Better:Worse Ratio: 24:1

Yeast overgrowth (Candida Albicans) is a very common finding in children with autism, and is one of the effects of their weakened immune systems and resultant administration of antibiotics to fight recurrent bacterial infections. Physicians who adhere to the Defeat Autism Now! approach very often order laboratory testing to determine if yeast is problematic, and if so, will treat accordingly with antifungal prescriptions. Parental reports of success with antifungal treatment are as follows:

Antifungals: Diflucan: of 653 cases, 5% got worse; 57% got better; 38% no effect
Antifungals: Diflucan: Better:Worse Ratio: 11:1

Antifungals: Nystatin: of 1388 cases, 5% got worse; 50% got better; 44% no effect
Antifungals: Nystatin: Better:Worse Ratio: 9.7:1

Specific nutritional therapies and supplementation targeted for the individual child is a cornerstone of biomedical treatment of autism. One must be careful in giving vitamins and it is not advised to do so unless you know what you're doing. Having said that, one of the most frequently recommended supplements for autism is Cod Liver Oil or Fish Oil (must be treated to remove mercury - don't buy cheap fish oil!!!!). Other Fatty Acids are also supplemented, based on lab results and detailed developmental history and family history. Parent ratings for the success of these interventions are as follows:

Cod Liver Oil: of 1681 cases, 4% got worse; 51% got better; 45% no effect.
Cod Liver Oil: Better: Worse Ratio = 13:1

Fatty Acids: of 1169 cases, 2% got worse; 56% got better; 41% no effect.
Fatty Acids: Better: Worse Ratio = 24:1

Heavy Metal toxicity is a very common finding in children with autism, as is shown on hair analysis, through urine provocation testing, and now with porphyrin tests. Chelation (removal) of heavy metals and other toxins is often a very effective component of biomedical treatment for autism and is used when indicated, based on laboratory findings. Parent ratings for success rates of chelation treatments are as follows:

Chelation: of 803 cases, 3% got worse; 74% got better; 23% no effect.
Chelation: Better:Worse Ratio = 24:1

There are many other intervention strategies that are helping to recover children from an autism diagnosis and Defeat Autism Now! clinicians and researchers all over the globe are working tirelessly in their efforts.

If you ask a parent whose child disappeared for years, who made no eye contact, spoke no words, and spent hours each day watching his or her fingers and spinning in circles, that parent's response to the question, "How successful is biomedical treatment?" will depend on his or her own experience. If you ask one of the parents I met at a Defeat Autism Now! conference, who's children actually got on the stage, made eye contact with the interviewers, and answered questions in front of hundreds of other parents and professionals, the answer, I'm sure, would be "Extremely successful!"

Biomedical interventions do not work for everyone, and the results are varied, depending on the particular child. This is also why the GF/CF diet or SCD diet or LOD diet, or whatever, is not THE answer for everyone. Individual children need to be treated as individuals. Treatments need to be tailored, based on the child’s own developmental and medical history, observations of parents, and results of laboratory tests that assess specific areas for intervention.

Every child is different and EVERY CHILD WITH AUTISM IS DIFFERENT. That's why the standard medical response, "There's nothing you can do for autism" makes no sense.

Autism is treatable. Recovery is possible. One child at a time.

To view videos of some of the many children who have been successfully recovered from an autism diagnosis by implementing some of the above biomedical interventions, please click on the links below. Head’s up: You might want to grab a box of tissues for these.

This information is 4allofyou!

Blessings,
Marci

Baxter's Recovery from Autism:
http://www.youtube.com/watch?v=UsmBoGPzx9U&feature=related

Ethan's Recovery from Autism:
http://www.youtube.com/watch?v=aEw0Y5LJ6vg

Edward's Autism Journey and Recovery:
http://www.youtube.com/watch?v=jtHvtWBv7aM