Tuesday, December 1, 2009
IT'S MINDBODY, NOT MIND-BODY
Last night I couldn't sleep. So I got up and fired off a few emails to Mr. Higgs, including copies of some PowerPoint Presentations I gave in April of this year. Among them was a presentation I put together in which I researched some of the specific toxins we have in abundance, here in Southwestern Indiana.
This morning I received an email from Mr. Higgs, with a few questions. Among them was the question of what to call those who seek out my services. Patients? Clients? and how to refer to their diagnoses: ASD?
The result of that email turned into a lengthy response, which I think makes a good blog post, so here it is:
As far as what to call those who seek my services...clients is more appropriate, I think. I wish I had given you one of my business cards. The tag I use on them (and my "letterhead") is "Family Coaching for Fragile Children." I work with kids (and adults) who have received any number of diagnoses, from chronic fatigue and fibromyalgia in adults to autism, bipolar disorder, ADHD, and Learning Disabilities in kids.
I was thinking about this a lot last night/this morning, and feeling so discouraged because there is SO MUCH to do and often feels like only me to do it.
I had another parent email and call yesterday, with questions about how to get her physician to order the labs we need. This is a 17 year-old with chronic GI pain, upper respiratory infections, strep, bronchitis, etc. (immune system dysfunction) since infancy. At 17, he now has pre-cancerous lesions in his gastroinstinal tract and the parents have been told that things will probably not ever get better for him; he'll just have to learn to live with the pain. The primary care physician has seen this kid probably 100 times in the last 12-13 years and has made numerous referrals to other specialists (GI docs, allergists, therapists, etc.). He has also collected many thousands of dollars from the family and their insurance company over that time. I saw this kid and spent more than 50 hours going over his medical records, abstracting them, putting everything in chronological order, researching and documenting everything that had happened to him since conception. I also spent about 5 hours with the family (and drove almost four hours round-trip to do so). When I wrote up the report, I did it in such a way that everything flowed and made sense. It was this kid's life story. The reason I did this was to be sure to make the case for the doctor, so he would understand the rationale behind what I was asking him to do. He had no problem with it. Said he would order the tests. However, he will not take the time to pick up the phone and call (or have his staff call) the labs to request the test kits. I even provided interactive links and telephone numbers at the end of the report, to make things as simple as possible. All it would take is five minutes and unfortunately, that's something he or his staff has to do. I can't order the kits and neither can the parents. (There are some labs - Great Plains, for example, that make this process much easier by allowing parents to order kits and take them to the doctor for his/her signature. Others are not as user-friendly, but the information provided by the labs is worth the effort, in my opinion.)
This is the most frustrating thing for me. Even when they finally begin to see why this makes sense, it's like pulling teeth to get physicians to change the way they do things. I don't think I explained this blatantly in my powerpoint about Biomedical Interventions, but this is why I talked about the two doctors (Marshall & Warren) who discovered H. pylori bacteria and its role in ulcers. They made the discovery in 1982 and it wasn't until 1995 that "Standard Medical Practice" finally changed from the mantra of "stress causes ulcers" to recognizing that if a bacterial infection was the cause, then it makes sense to treat with an antibiotic. As a result of the extremely slow awakening of the medical community, hundreds of thousands (millions?) of people suffered with ulcers that could have easily been treated. It took 13 years for them to wake up. How many children will we lose in 13 years? (This may be a good time to read the first post on my blog: AUTISM IS TREATABLE)
When we talk about biomedical interventions for autism and other "spectrum disorders" like ADHD, Learning Disabilities, Asperger's, PDD-NOS, bipolar disorder, etc., we are talking about a "whole-body" affliction. That's the major problem with why the medical community is not "on-board." This is completely the opposite of what medical schools have taught for the last few generations, at least. The medical system has moved almost exclusively to specialty care, where you see one doctor for your feet, another doctor for your gut, another doctor for your ears, another doctor for the fungus under your nails, and another doctor for your "mental" or "cognitive" difficulties. Each one sees only a part of the patient, rather than looking at the entire person. The biomedical approach to autism (and other whole-body afflictions) is a systems approach that emphasizes the fact that there is no such thing as mind-body. It's mindbody. All one child; all one word. There is nothing physicially separating the mind from the rest of the body and we need to stop treating our children as if they have been decapitated. What happens in the body affects the brain and vice-versa. This is another reason why the impact of environmental toxins is so important to consider. Lead, mercury, and other heavy metals negatively impact the entire body by damaging enzymatic processes. They cause disruption everywhere. Until we start assessing and addressing the damage caused by environmental toxins, everything else we do is just bandaids.
Marci
Thursday, June 4, 2009
A Tale of Autistic Blood - Article from Age of Autism, by Kent Heckenlively, Esq.
A Tale of Autistic Blood
By Kent Heckenlively, Esq.
This may be the most important article about autism I’ve ever written. But first I need you to do a little work. I need you to go to this site (HERE) and watch the approximately five minute long video comparing the blood of six autistic children put together by Mark Squibb.
Marci's Response:
IMO, I believe this is another physiological marker of the multiple factors involved in autism and pretty much all of the comments posted are on track.
Stress will cause aggregation in preparation for clotting in case of injury. Think "fight or flight" - when you are preparing for battle or to run away, there is a significant chance you may get hurt. When the the balance of stress hormones is disrupted (shifted) due to high anxiety or panic, the body doesn't differentiate between real or perceived danger and prepares to clot. So thats ONE factor at work.
Heavy metals like lead and mercury (and aluminum which is not technically a "heavy" metal) also damage the circulatory system and lead to problems like Raynaud's Syndrome, atherosclerosis, hypertension, stroke, and aneurysm.
Metals and other toxins have something else in common - a single valence electron in their outermost ring. This makes them very attractive to each other - they don't like to be alone but like to travel in pairs so they will "hook up" with other toxins. This is one reason (along with impaired detoxification due to depletion of metallothionein) why our kids, once shot up (pun intended) with aluminum or thimerosal (flu vaccine, rhogam, etc.) become like magnets for other toxins. It's also why when chelating, mercury does not come out until after aluminum, antimony, and lead. The magnets (our children) hold onto the metals because their electrical charges have been altered. This was for me, probably the most fascinating thing about the video by Mark Squibb - he actually points out the alteration in electrical fields in the blood patterns of autistic children.
The comment about babesia (a bacteria associated with Lyme disease) is also correct, which is why adults with chronic Lyme exhibit many of the same behavioral and neurological issues as do children with "autism."
Infections in the blood (from systemic yeast, viruses, strep, staph, etc) will also cause clumping, as what is left of the immune system tries to kick in and fight off the infection. Remember that one of the first things the immune system does is to send extra blood (and oxygen) to the sight of injury or infection. This is part of the healing process and is why we get the swelling, heat, and itching when we get a minor cut or scrape. That's the body's attempt to heal.
The problem is, in our children there are so many different things to fight that their bodies become confused and shift over into autoimmunity. The analogy I use is like the old Space Invaders game where you start of shooting at one bad guy and it's relatively easy, but as things speed up, there are too many bad guys to shoot at accurately and you end up crashing and burning.
Finally, the genetic link is (again, IMO) often associated with metals (especially lead) that is passed from mother to child. In the family histories of my patients I frequently see higher than expected occurrance of things like stroke, blood clots, hypertension, bipolar disorder, heart-valve problems, and heavy bleeding/clotting with menses. All of these things, (and autoimmune thyroiditis) are associated with lead poisoning. When I check further, these parents and grandparents grew up with coal-burning stoves, lived near or worked in coal mines, or in some cases owned gas stations (before gasoline was unleaded.)
Very interesting article and video - thanks so much to the folks at Age of Autism for your wonderful work, and to my friend Lori for bringing this article to my attention!
Marci
Wednesday, September 17, 2008
An Open Letter to Governor Mitch Daniels Regarding Thimerosal and Environmental Mercury

I have lived in the state of Indiana for seven years. There are a few questions I, as one of your constituents, would like for you to address.
First, I would like to know why Indiana, and particularly Southwestern Indiana, needs more coal burning power plants, and please do not tell me it's because it's good for our economy.
- With the majority of counties in SW Indiana out-of-compliance with the EPA's Clean Air Act our economy and infrastructure is no doubt on the losing end due to loss of federal funding.
- The cost of lost work days by our citizens who are too sick to work, due to the effects of heavy metal poisoning and cardiopulmonary damage from particulate matter surely cannot be good for our economy.
- The increase in the incidence of autism, which has been shown to be related to the proximity to coal-burning power plants, cannot be good for our economy, especially when you consider that there are no daycare facilities who will accept children with "behavioral problems." Mothers of sick children frequently have no other option but to withdraw from the workforce and stay at home to care for their child. Statistics reveal an 85% divorce rate in families of children with autism - they succumb to the unrelenting stress, which encompasses EVERY aspect of EVERY hour of EVERY DAY. There are no state provisions for respite care, and no state funded programs for adolescents and adults with autism who age out of the system at eighteen. Families are left holding the bag and footing the bill. Surely this is not good for our economy in the state of Indiana.
And, speaking of sick children, I for one do not think it is coincidental that the top five agricultural crops grown in Indiana (and exported all over the world) are the same top five foods that have been demonstrated to cause intestinal problems, including colic, chronic constipation, and diarrhea in children with autism. It is also not coincidental that when these five foods (wheat, dairy, corn, soy, and eggs) are removed from the diets of children with autism, more than 65% of those children improve significantly, some to the point where they actually LOSE their autism diagnosis. Do you really believe this is a coincidence? What is going to happen to the economy in Indiana when the rest of the world realizes that it may not just be the food that's making them sick, but the poisons that are in the food? SURELY THAT'S NOT GOING TO BE GOOD FOR OUR ECONOMY!
As I am sure you know, the heavy metals that go into our air and water also go into our soil and from there, into the food we grow. As the photographs above clearly show, there has been no effort in this state to ensure that our food supply is spared from the toxic plumes being spewed from the coal-burning power plants. There has also apparently been no concern about locating power plants within spitting distance of elementary schools where our children are required by state law to spend a certain amount of time outdoors, running, playing and practicing sports and other activities. Isn't this inconsistent with your push for Healthy Hoosiers?
With the ever-increasing frequency of Ozone and PPM days, during which "sensitive groups," including children, are advised to stay indoors, it's no wonder Indiana ranks at the top of the charts for citizens who qualify as morbidly obese. With the serious health problems associated with that condition, I can't fathom how this outcome could contribute to a strong economy for the state.
With the neurological damage caused by heavy metals, including the loss of IQ points associated with even minute exposure to lead, we are spending increasing amounts of our tax dollars on special education programs, to remediate the damage done by the power-plants and their toxins. How is that good for our economy?
In Vanderburgh County, we are currently on target to surpass last year's suicide rate, and once again reclaim our title as the county with the highest suicide rate in the nation. Two years ago, the rate was four times the national average - AND the rate in Vanderburgh County was four times the rate of the state of Indiana. Of course, many of those people who killed themselves may have been on the public assistance roles, due to physical and mental health problems, so I guess their deaths could conceivably be good for the economy on some level, but I sincerely hope this is not one of the areas you would consider a "positive" outcome of increased coal production.
A related issue is the extreme amount of Vanadium introduced into our environment as a result of coal production. With excess vanadium resulting in the depletion of lithium, this is a very likely contributor to the suicide rate, as depletion of lithium is associated with bipolar disorder. Of course, you may not be aware, or may have forgotten the outcries for more psychiatric facilities after the suicide death of 10 year-old DeTwain Barnett in May 2007. Unfortunately, until the environmental poisoning is decreased, the suicide rate is not likely to decrease, nor is the shortage of mental health providers in this area.
A second question I have is related to your former position as Senior Vice President of Marketing Strategy for Eli Lily, and your subsequent position as Budget Director for the Bush White House. In my attempt to understand the Lily Rider, which was sneaked into the Homeland Security Act, I did find a newspaper article that printed your adamant denial regarding any knowledge or responsibility for this rider, which was meant to deny families of children poisoned by thimerosal (mercury) in vaccines their right to due process in a Court of Law. My understanding of this rider is that it is called "The Lily Rider" because Eli Lily was the developer of thimerosal and so by denying families their day in court, the rider protected the pharmaceutical giant, which just happened to be your former employer.
Two questions:
1. If not you, then who?
2. Do you own stock in Eli Lily?
One final question I'm pondering is this: Given the obvious health problems and associated economic costs to a state from being the "coal-burning power plant capital of the world," and, given the documented association between mercury and coal-burning power plants AND autism, WHY WOULD THE GOVERNOR OF ANY STATE WANT TO INCREASE MERCURY IN THE ENVIRONMENT OF HIS OR HER CONSTITUENTS?
Of course, I could understand why, if the governor in question had reason to confound the evidence regarding whether or not thimerosal (mercury) in vaccines had anything to do with the epidemic of autism in America's children.
If not you, then who?
Looking forward to your assistance in sorting out this confusion.Sincerely yours,
Marcella Piper-Terry
Thursday, August 14, 2008
IT'S IN THE AIR IN SOUTHWESTERN INDIANA
I'm reposting this because it is so important. Please help me to bring attention to this issue.
God bless you.
Original post:
Today is August 14, 2008. The air today is unhealthy for sensitive individuals to breathe due to high levels of particulate matter. The forecast indicates we will have another PPM alert tomorrow, too. Unlike forecasting the weather, predicting the air quality here is no challenge. If it’s hot enough, don’t go outside if you are “sensitive.” This includes children, the elderly, and anyone who has asthma, allergies, or cardiopulmonary problems.
A major component of our particulate matter is sulfur-dioxide. It has been my belief for the last few years, that the high level of SO2 plays a major part in the incidence of learning disabilities, ADHD, and Autism in the children of the tri-state. In April 2007 I attended my second DAN! (Defeat Autism Now!) conference, which was held in Washington D.C. One of the questions I asked was if anyone is doing research to determine if SO2 is a contributing factor in the increase of autism and other developmental disabilities. Dr. John Pangborn, who is a brilliant man and has contributed SO much in the way of research, especially regarding the role of mercury in autism, responded to my question by stating, "Sulfur-dioxide is a noxious, toxic, poison. You can see it in the air, you can smell it, and you can taste it... If you believe sulfur-dioxide is contributing to your child's problems, my suggestion to you is MOVE!"
I was so taken aback by Dr. Pangborn's response that I spent most of that night writing a letter to him. That letter is the bulk of today's post.
Having had time to reflect on this situation, I must now thank Dr. Pangborn for his candor. The message we must internalize is this:
There is no cavalry coming to save us. We, the citizens of Indiana, have to do this ourselves.
LETTER TO DR. JOHN PANGBORN
FROM: MARCELLA PIPER-TERRY, M.S.
DATE: APRIL 23, 2007
Dear Dr. Pangborn:
My heart sank when you advised me to move. Then I got angry. Then I felt sick to my stomach and the tears came.
I know sulfur-dioxide is part of why there are so many sick children (and adults) in Indiana. My daughter is not the only one. Your statement, “…I suggest you move,” cut me to my soul. It’s the very same thing I have been fighting the urge to do since realizing, three years ago, that if I didn’t, I would be continuing to put my daughter’s health in peril – as well as my own – and that of my grand-daughter/adopted daughter.
My husband spent 24 years in the United States’ Air Force and now works managing the prototype Doppler Radar – which he has worked to build – from the ground-up, in a cornfield in rural Gibson County, Indiana. In November 2005, our community of Evansville lost 23 of our neighbors when a tornado hit at 2:00 a.m. We are still recovering and counting our blessings that thanks to the Doppler Radar, many thousands were able to prepare because we were informed and could take action against the threat. If not for the data provided by the radar, many more lives may well have been lost.
Before our move to Indiana my husband and our family lived here in Washington, D.C. Steve was the “Senior Non-Commissioned Officer In-Charge” of the “Ground Radar Maintenance Shop” at Andrews Air Force Base, and traveled worldwide to maintain the Air Force Radar Systems. I stayed at home, raising our daughter and working 3 days-a- week doing neuropsychological evaluations of children with ADHD, LD, ASD, and PDD.
In 2000, I was preparing to enter the doctoral program in Social/Health Psychology at George Washington University, where I had been offered full funding and a teaching assistantship. My studies and assistantship duties were set to begin in September 2000. In May 2000, I learned that the five month-old daughter of my 18 year-old bipolar/ADHD and (I now know) severely gluten/casein allergic son had been exposed to multiple toxins in utero through her 20 year-old mother’s drug and alcohol abuse. My grand-daughter was in an environment of ongoing and worsening neglect, which I could not ignore. She was floppy, exhibited tremors, screamed suddenly and for no reason, and had very poor eye-contact. Her mother was involved in an abusive relationship and her drug use was ongoing. (My son was also using drugs heavily and had been out of the picture since before the birth.)
When information came to light about the baby’s current situation, I could not sit by. I went to the Prince George’s County Courthouse (sans attorney), filed an ex-parte (had no idea what it was) and somehow was able to obtain emergency custody of my granddaughter. One week later the ex-parte was extended for one year. At that point it dawned on me that I needed a clone because there was no way I would be able to raise this baby and do full-time doctoral psychology load and teach and raise my five year-old.
With my husband’s retirement zooming at us in two years’ time and no job lined up for him, he agreed to embark on this commitment with me (after an initial, “You DID WHAT???!!!!”). I think I forgot to mention that he was TDY (Temporary Duty assignment) to Germany and Italy for 30 days when I got the emergency custody order. Anyway, I promised Steve that if he would do this with me, I would go wherever he needed to go, and do whatever I had to do, but I could not turn my back on Leah. The Ph.D. could wait. She couldn’t. It wasn’t even hard to walk into the psych department at George Washington University and tell Dr. Paul Poppen that I was not going to be working with him after-all. It would have been much more difficult if I had not had Rachel by the hand and Leah in my arms, but I knew without a doubt, that I was doing the right thing and I have never regretted it.
We got permanent custody of Leah in August 2001 after her mother deserted her and moved to Utah with the abusive boyfriend. We haven’t heard from her since and formally adopted Leah in May 2005.
On September 11, 2001 I took Rachel to school at Francis T. Evans Elementary, just outside the the gate and then dropped Leah off at the babysitter’s at 9:00 a.m. I heard about the first plane hitting the World Trade Center when I got back in my car and turned on NPR. When I pulled into the gas station on Andrews’, I heard about the second plane. As I was leaving the base, thinking, “This is NOT good…We’re next…” I saw the military guards with M-16s running toward the gate, beginning to close off the base – as I was driving through – leaving my children and getting onto the beltway to drive to Silver Springs, where I worked. Within minutes, I could see smoke downtown, and my brain just kept playing, over and over, “This is not good…This Is NOT Good…This is NOT GOOD…”
I am thankful to God and all the guardian angels in the cosmos that NPR did not announce, “The Pentagon has been hit” until I had pulled to the curb in front of my office – 45 minutes from Andrews Air Force Base. I don’t know how long I sat – holding my breath – with my hands covering my mouth – trying to keep the first giant sob from coming out. I think it must have been at least 30 minutes before I finally was able to turn off the car and stumble to the door. I don’t remember walking – only falling to my knees as soon as I got inside. Then the shaking started – and the real tears – as it hit me that I didn’t know if Steve was on Base that Tuesday – or if he was at the Pentagon. – My Girls – Leah is on base --- Rachel is at school just outside the gate – and BUSH’s Plane – THE TARGET – is on its way back to Andrews’…
It was four hours before I knew if my husband was alive, and it was 7:30 that night before I could get home because the beltway was gridlocked and people were panicking and running over each other. We were told, “If you’re safe, stay put!”
When I finally got back to the base, it took nearly 3 hours to drive and get through security – every car had to be searched. There were dogs to detect explosives and after that, I drove through what seemed like an endless gauntlet of soldiers lining both sides of the single-lane path, each with his or her M-16 at the shoulder.
Sadly, we got used to the searches and guns every time we took our daughter to school or brought her home – or left the base and returned for other reasons.
Shortly after 9/11, Rachel developed tic behaviors. She was always spacey and “zoned out” but things got a lot worse. Ultimately, she was diagnosed with ADHD and OCD, after ruling out seizures and Central Auditory Processing Disorder at Johns’ Hopkins – I don’t mess around – I insisted Rachel be seen by John Freeman at Johns’ Hopkins Neurology and by Dana Boatman at JHU Cognitive Neurology for Central Auditory Processing testing. Then I took her to Walter Reed where she was evaluated by Stacey Williams, Chief of Behavioral Psychology. Rachel saw Dr. Lowry Shropshire, Head of Developmental Pediatrics at Bethesda – and after he put her on Dexedrine we saw a little improvement in attention – but worsening of tics and emotionality --- and so it goes.
Meanwhile, Leah continues to grow and with daily interventions (e.g., music, reading, pictures, touch, smell, etc…) her Developmental Quotients went from 100 (receptive) and 80 (expressive) at 11 months to 132 (expressive) and 134 (receptive) at 17 months – what can be done with neuronal plasticity!!! Behavior and fears were still issues, but she was (and is) doing great!
In October of 2002, we were preparing for our move to Indiana. I was still working in Silver Springs 3 days/week and was on my way to work on October 3rd – the first day of the Sniper Shootings. For the next 3 weeks I, along with everyone else in this area, lived in a CONSTANT state of Autonomic Nervous System (ANS) Hyper-arousal as we waited to see who was going to be killed next and where it would happen.
My family and I finally left for Indiana on October 25, 2002 – the day after “John Allen Muhammed” and “Lee Boyd Malvo” were arrested. Since moving to Indiana we have had a lot of adjustments, but life has definitely been quieter – in some respects. I have built a practice through networking and word of mouth. I am now attending my second Defeat Autism Now! conference, with plans to further educate and collaborate with physicians and families in our region so we can help our children heal. I live in Evansville and the closest Defeat Autism Now! practitioner that I know of is four hours away.
The incidence of Autism, ADHD, and PDD in our area is staggering – just as it is in Texas, or California, or New Jersey. My child is not the only one. Rachel has definitely gotten worse with each successive assault on her immune system – Trauma, Viral Infections, and Toxic Overload are hurting MY CHILD – and thousands of other children in the mid-west. (Note: At last night’s wonderful dinner and tribute to Bernie Rimland, whom I was fortunate enough to hear speak in Long Beach, the Mid-West Contingent consisted of ONE TABLE. My friend and I – traveling together – were the only two people from Indiana – and neither of us is an M. D.)
There have been MANY times in the last three years when I have told myself – and my husband, “We HAVE TO MOVE away from Indiana! This place is a toxic pit! It’s a cancer cell and the kids here are being poisoned! We are ALL being poisoned!”
My question to you is WHERE SHOULD WE GO?
I spent the first 12 years of my life in Orange, California, where the playground of my elementary school was located on a hill directly adjacent to the 55 freeway – before gasoline was unleaded and before catalytic converters. This was the source of a significant body burden of lead which no doubt contributed to my son’s extreme ADHD and bipolar diagnosis.
In 1972, my parents moved us to Mississippi, where they bought a big white house with pillars, azaleas, a veranda, and a one-acre pecan orchard. The “Big-House” was built in 1875 and my mother absolutely LOVED it. After it was nearly destroyed by fire several years later, my well-meaning but very uninformed sisters and brothers-in-law tried to save my mother some money by doing much of the repairs and renovations themselves. The paint-sanding went on for months, intermittently. None of them wore masks. My mother, who was still living in the house, got sicker and sicker and nobody knew why. She finally got over the “blow-out diarrhea” and constant “stomach virus that just won’t go away,” but she almost never felt well enough to get out of bed for more than a couple of hours at a time.
My mother was a classical pianist. At age 64 she obtained her Master’s Degree in Piano Performance. She was hoping to get her doctorate and conduct. Six months after she got her masters’ degree, she fell and broke her hand when she put it out to catch herself. After several months of rehabilitation therapy, she was finally able to move her fingers well enough to start playing again. That’s when she discovered she could no longer sight-read – something she had been doing since she was five years-old. I will never forget the pain in her voice when I stopped by to see her one afternoon and found her sitting at the piano, fingers on the keyboard, just sitting there – staring at the music. I asked what was wrong and she looked at me and said, “I can’t make my hands do what my eyes see.” (This was the first observable manifestation of the lead that flooded her body once again when she broke her hand, releasing it from bone marrow where it had been stored since shortly after the initial exposure.)
Less than a year later my mother’s thyroid disease was progressing so rapidly she was told she had to drink radio-active iodine. (Lead destroys the thyroid.) The next year, her heart stopped during a cardiac catheterization and she was taken by ambulance to University of Alabama at Birmingham where she underwent emergency open-heart surgery. After they cracked and spread her ribs, the neurological deterioration was very rapid. She could no longer speak and look at me simultaneously because what she saw interfered with her ability to formulate expressive language. When she spoke, it didn’t make sense.
The worst thing was, she was still able to realize that she wasn’t making sense. The last complete sentence my mother ever said to me was excruciatingly difficult for her to get out – and for me to hear. I can still see her face – eyes squeezed shut tightly, forehead and brows furrowed and wrinkled, and her teeth clenched so hard I thought they would break… “I wish…I could…finish…one…thought.”
There was no doubt in my mind that my mother was disintegrating because of lead poisoning. NOBODY would listen. They said her cognitive decline was due to the effects of oxygen deprivation during her surgery, and would get better with time. It wasn't, and it didn't.
“The Big House” is still standing and another family lives there now. Many houses in the Mississippi Gulf Coast town where my husband and I bought after our daughter was born did not survive hurricane Katrina. To our knowledge, no one we knew personally was killed in the storm or as a result of the aftermath. I have not been able to bring myself to visit the Gulf Coast yet. It still feels too raw…like my history has been erased.
My mother died three years ago, at the age of seventy-one. She got her Masters’ Degree at 64. She broke her hand at 65. She had her ribs cracked and spread for 2 open-heart surgeries at 66 and 67. The last word she ever spoke to me was “Dignity” – which she was finally able to say after several minutes of struggling to get it out. I knew what she was asking but I couldn’t help her. She was pleading with me to help her die. That was seven months before she finally stopped suffering.
I begged for someone to please listen to me. No one ever did.
My mother had arranged years prior to donate her body to the University of Mississippi Medical Center, in hopes that from the study of her system, others would benefit. I asked the doctors, when the final arrangements were made, if they would PLEASE test her lead levels and let me know the results. Even that request was denied. We are still waiting for her ashes to be returned to us.
My question about sulfur-dioxide is based on clinical observation and objective data. Over the last four years I have evaluated more than 60 children in Indiana. Between 1999 and 2002 I assisted Dr. Susan Van Ost in evaluating hundreds of children here in the D.C. area. The children are different.
The incidence of visual processing disorders is MUCH higher in Indiana. I believe the Sulfur-dioxide in the air is at least partly to blame and I believe it is also interfering with the sulfation pathway and contributing to the presentation of autism in OUR children. We can’t just move. We have to figure out how to fix it. If we ignore it and run away, who is going to help all the other children? And even if I COULD “just move” – Where do you suggest I GO?
PLEASE LISTEN.
Marcella Piper-Terry, M.S.
Final note: There is no real "safe place." In order to survive, we must assess the situation, do what we can to improve our ability to survive, and work together to begin addressing the things we cannot immediately control. Our children with autism and other biologically based “developmental disabilities” are the canaries in the coalmines. If we don’t learn from them, we will all pay the price.
P.S.: Dear Mom:
Today, August 14, 2008 is the five-year anniversary of your death. I miss you terribly but I feel you with me. I love you always.
Marci
Friday, July 18, 2008
Environmental Toxins and Autism in Indiana
I just finished responding to an article in today's Courier & Press Newspaper, regarding the surplus in Indiana's budget as a result of Governor Mitch Daniel's fiscal policies. http://tinyurl.com/5l6r4j
Another article in today's paper indicates that Governor Daniels has slated that a considerable amount of money from the surplus will be available to the educational system for their "rainy day fund." http://tinyurl.com/5swvwz
As far as autism is concerned, it's raining.
Governor Daniels, in his push to move Indiana's bank account to the black, has accomplished many things, including pushing for the establishment of more coal-burning power plants and more industry to exploit our natural coal reserves, comparing Indiana to the Middle East and its oil fields.
Unfortunately, the increase in pollution resulting from these actions is likely to not only negate any positive financial gains, but has to potential to impact the entire United States (and beyond) as Indiana's crops (wheat, corn, soy, milk, and eggs) are polluted with environmental toxins as a result of increased mercury, lead, antimony, cadmium, and bismuth from the power-plants.
This is nothing new. What follows is the text of a post from last year, on this same blog:
To Whom it may concern:
I moved to Indiana four years ago from Washington D.C. I have worked for ten years as an educational consultant and advocate and conduct neuropsychological evaluations of adults and children - something I did in D.C. for three years prior to moving here. The children in Indiana are different from the children in D.C. or those I evaluated in Mississippi and Alabama years ago. When there are differences among peer-groups from one geographic location to another, we need to look at environmental influences as a contributing factor.
I was born in California. I have lived in Los Angeles, San Francisco, Atlanta, and Washington D.C. I looked forward to moving to Indiana, especially after living through 9/11 and the Sniper incidents. I expected the midwest to be clean and quiet. It is quiet, but it is not clean. The air here is the worst I have ever seen at the surface level (the air be breathe). The incidence of asthma, emphysema, allergies, and cancer is staggering. During the first several months following my relocation, I worked as a school psychologist for the EVSC - Evansville-Vanderburgh School Corporation - doing evaluations of children with developmental disabilities. I was heart-sick at the number and severity of problems in the children here. These are the sickest children I have ever seen.
With the recent increase in suicides, everyone is scratching their heads and asking themselves, "How can this be happening?" "What's going on in the mental and emotional lives of these people?"This is not a "mental health" problem, it is a HEALTH problem! What is the common factor? We all breathe the same poisoned air.
Indiana's state government entices big business to locate here so the economy can "boom" and people will have more money in their pockets when they die. The counties of southwestern Indiana (Vanderburgh, Warrick, Spencer, Pike, and Posey) are targets for big business and big polluters. In 2004, Alcoa and Sigeco (both in counties neighboring Vanderburgh) were listed in the top five nation-wide for the amount of toxins (sulfur-dioxide, nitrogen-dioxide, lead, mercury, tin, aluminum, cadmium, and arsenic, etc.) spewed into the air. Things have not changed for the better since 2004.
I recently spent the day visiting the EPA website and looking at the data from the latest Toxic Release Information (TRI, 2005). Looking at the information for Warrick County (Alcoa, Sigeco, and VIGO Coal), one can see that the amount of toxins going into our air is rising, not declining. Of particular concern are levels of barium, lead, manganese, mercury, and vanadium.
The following information is from: EPA TRI Explorer Report (COFA)
Releases: Facility Report
ALCOA INC WARRICK OPERATIONS, NEWBURGH
BARIUM COMPOUNDS 374,487 (pounds)
LEAD COMPOUNDS 84,770
MANGANESE COMPOUNDS 137,868
MERCURY COMPOUNDS 438
VANADIUM COMPOUNDS 242,754
SIGECO GENERATING STATION, NEWBURGH
BARIUM COMPOUNDS 241,245 (pounds)
LEAD COMPOUNDS 52,708
MANGANESE COMPOUNDS 172,820
MERCURY COMPOUNDS 205
VANADIUM COMPOUNDS 331,500
VIGO COAL OPERATING CO, BOONVILLE
BARIUM COMPOUNDS 329,005 (pounds)
LEAD COMPOUNDS 58,187
MANGANESE COMPOUNDS 274,255
MERCURY COMPOUNDS 429
VANADIUM COMPOUNDS 493,005
There are many other toxins of concern, including high levels of copper, nickel, bismuth, and cadmium. However, for the question regarding the increase in suicides, I believe these are especially relevant. I have provided information regarding the physiological effects of these compounds, as well as symptoms of toxicity.
The following information is taken from the Toxic and Nutrient Elements Chart (Genova Diagnostics):
Barium 944,737 pounds released into air, water, soil, by Alcoa, Sigeco, & Vigo Coal in 2005: Displaces potassium and increases stress hormone (catecholamines). High levels may trigger ventricular fibrillation, broncho-constriction, and brain swelling.
Symptoms of toxicity: Difficulties in breathing, increased blood pressure, changes in heart rhythm, stomach irritation, brain swelling, muscle tingling/weakness. May damage heart, liver, kidneys and spleen.
Lead 195,665 pounds released into air, water, ground by Alcoa, Sigeco, & Vigo in 2005: Lead binds to hemoglobin, deposits in bone, aorta, kidney tubules, brain, adrenal, thyroid, liver. Inhibits heme synthesis, may depress mitochondrial respiratory chain. ATP-ases also affected.
Symptoms of toxicity: Microcytic anemia, glycosuria, cognitive dysfunction, anorexia, metallic taste, insomnia, reticulocytosis. Target organs include the brain, bone, blood, kidneys, and thyroid gland.
Mercury 1072 pounds released into air, water, soil by Alcoa, Sigeco, & Vigo in 2005: The organic form is readily absorbed in the gastrointestinal tract (90-100%); lesser but still significant amounts of inorganic mercury are absorbed in the gastrointestinal tract (7-15%). Organic mercury has a half-life of 2 months & binds to enzymes, proteins, and glutathione. MAO, catalase, P-450, and mitochondrial functions are affected. Accumulates also in the liver and kidneys.
Symptoms of toxicity: Headache, fine tremor, increased salivation, excitability, hypertension, skin rash, poor mental concentration, metallic taste. Target organs are the brain and kidneys.
Manganese 484,943 pounds released into air, water, soil by Alcoa, Sigeco, & Vigo Coal in 2005: Key in mitochondrial superoxide dismutase. cAMP and intracellular calcium levels are modified with manganese. Deficiency results in abnormal arginase and Krebs cycle conversion of pyruvate to oxaloacetate. Also crucial for bone and connective tissue.
Symptoms of toxicity: (Rare), by inhalation or mining activities. Poor bone/connective tissue growth. Impaired glucose tolerance and lipid metabolism, skin dryness, hair changes, allergies, behavioral problems.
Vanadium 1,067,259 pounds released into air, water, & soil by Alcoa, Sigeco, & Vigo Coal in 2005: Quite active in physiologic systems, with three main types of actions. Competes with phosphate and other metals for binding sites on proteins. Shows insulin-like effects and increases cAMP formation thus accounting for its enhancement of cellular phosphorylation. Studies show high levels associated with bipolar disorder in some cases.
Symptoms of toxicity: Toxicity at high levels is reported and can occur via inhaled vapors as products of combustion. Symptoms can include; arthritis, aching bones, jaw, teeth, tonsils, ears, weakened immune system, chronic colds, gastrointestinal problems, trabecular bone loss, green tongue coloration.
Obviously there are multiple factors involved in the breakdown of our health system (mental and physical). The shortage of inpatient psychiatric beds has received a lot of press recently. I agree, there is a pressing need for more psychiatrists and more facilities, both inpatient and outpatient. However, unless we start looking at the causes of the increase in mental and physical illness, we are likely to find ourselves in an endless cycle of adding more facilities and more beds with the outcome being the same: It will never be enough.
Marci

