Friday, March 6, 2009

Preparing Your Body for Pregnancy; Preparing Your Child for Vaccination

If you have read much about biomedical interventions and recovery from autism, you may be familiar with the analogy of being hit by a bus. As Stan Kurtz writes, “You cannot be cured of being hit by a bus, but you can recover from it. You might even be able to recover enough that you do not need to park in special parking spaces when you go shopping. If you are fortunate enough you might recover well enough that you gain back so much of your functioning such that no one would know you were ever in an accident.” This is a great analogy, especially for those children who have already received a diagnosis of autism. In many cases, while we may not be able to “cure” the autism, if we address the underlying conditions through appropriated testing and treatment, we may be able to recover the child to the point where he or she no longer meets the diagnostic criteria for autism. In many cases, no one would ever guess the child had been “hit by the bus” in the first place.

But wait…

What if we could prevent your child from being hit by the bus in the first place?

Let’s think about pregnancy. When a fetus is growing in the womb, it is incubating. We have been told for some time now that pregnant women should not smoke and should not drink alcohol, because these behaviors are known to be damaging to a developing fetus. The peer-reviewed medical literature is bursting at the seams with paper after paper, documenting the research findings about the teratologic effects of tobacco and alcohol.

Teratologic: the scientific study of visible conditions caused by the interruption or alteration of normal development

Marci’s note: Teratological effects may well include effects that are not “visible” and which may not become known for a long time after the exposure that caused the damage. Examples:

  • Babies who were fed soy formula. Soy is a source of estrogen. When fed as the sole source of nutrition, the amount of estrogen taken in can disrupt the balance between hormones, and may contribute to the early onset of puberty in girls, and delayed onset of puberty in boys.
  • Terbutaline administration. Terbutaline is a medication given to women to stop preterm labor. It has been linked to later onset of learning disabilities and social deficits in children whose mothers took the drug during pregnancy.

By now, everyone has heard that there is an epidemic of autism in this country. There are some people who still want to deny this fact, but the evidence is overwhelming, and it is real. It’s not just because of more inclusive diagnostic criteria. It’s also not purely genetic. There is no such thing as a genetic epidemic. So what’s going on? And why can’t the researchers figure out the cause of autism?

The clue is in the previous question. As long as researchers are looking for “the cause” of autism, they are not going to find it. Why? Because multiple factors working together synergistically is the source of the epidemic. There is no single “smoking gun.” If you are not familiar with the concept of synergism, you need to understand this key concept. Here is the definition:

Synergism: the phenomenon in which the combined action of two things such as drugs or muscles is greater than the sum of their effects individually. In the case of drugs, the result may be dangerous to the patient.

Marci’s note: in the case of toxins (heavy metals, toxic chemicals, pesticides, organophosphates, food additives), the combined action of two (or more) things is greater than the sum of their effects individually. The result may be dangerous to the patient. Alternatively, the synergistic effect of a genetic predisposition and an environmental exposure (to metals, pesticides, medications, etc…) will be more damaging than the effects of either situation (genetic or environmental) alone. The result may be dangerous to the patient. (Remember that in this case, the patient is the infant in the incubator.)

Synergy is an extremely important concept when it comes to autism and other neurodevelopmental disabilities. The concept of synergy is precisely why families who have sought relief through “The Vaccine Court” have not been successful in establishing that their children’s regressive autism was caused by the combination of thimerosal (mercury) and the MMR vaccine. (Note: the basic premise of the argument is that the child’s immune system is compromised by mercury (a heavy metal, which damages multiple systems in the body, including the enzymatic processes, and detoxification pathways), predisposing the child to be more vulnerable to the effects of the MMR vaccine (a vaccination which simultaneously injects three separate viruses into the blood stream, bypassing the body’s primary immune defense mechanisms (gastrointestinal and respiratory), ultimately resulting in a situation which overwhelms the body’s defenses and leads to chronic illness (fever, vomiting, diarrhea, constipation, ear infections, respiratory infections, chronic tonsillitis, strep, bronchitis, allergies, asthma, & seizures), which later results in the behavioral and cognitive symptoms that lead to an “autism spectrum disorder” diagnosis.

Please remember that the fever, diarrhea, constipation, vomiting, seizures, etc… tend to occur prior to the behaviors that lead, ultimately, to the “autism” diagnosis. This is an important piece of information, especially since most parents I have spoken with report that the “experts” who diagnosed their children with “autism” often state (with considerable authority) that the physical symptoms (diarrhea, constipation, vomiting) the parents are reporting are “just part of autism.” The physical symptoms are therefore ignored. This is PRECISELY why professionals who do not look further than the obvious behavioral and cognitive presentations, can and do state (with considerable authority), that “Autism is a lifelong condition and there is nothing you can do about it.” From where I sit, it looks like the authorities have it backwards. The physical symptoms happen first and the behavioral and cognitive symptoms happen as a result of the physical symptoms. Therefore, the lack of eye-contact, reduced awareness of the environment, inattention, aggression, and poor social skills are “just part of the gastro-intestinal disease” and if we do something to fix the GI problems, the symptoms associated with the child’s “autism” diagnosis will improve. If this sounds like voodoo science to you, let me phrase it differently.

Consider, for a moment, symptoms that you yourself might have had. Have you ever had a migraine? Have you ever had a “stomach virus” with nausea, pain in your gut, diarrhea, constipation, achy joints, headache and ‘brain-fog?’ If you have, please try to recall at this moment what it felt like. Now, imagine you are in a room full of four year-olds – a preschool environment. Do you feel “social?” Can you concentrate? Are you likely to learn and “achieve on par with your potential?”

If you only consider “autism” – which is a behavioral and cognitive-based diagnosis – and do not look further, the professionals who tell you with so much authority, “There is nothing you can do” are probably correct. If you don’t look beyond the behaviors and the label, it is likely that you are facing a lifelong diagnosis, for which you will not see significant improvement. In other words, your child will most likely never get married or have children, will probably not be able to live independently, will most likely not be able to support himself or herself, and will require full-time support from you until the day you die – which will probably happen prematurely due to all the stress you will endure in the interim. And your marriage? Statistics indicate that the divorce rate among couples with autistic children is 85%. Is this a good time to talk about the economy and the difficulties of single parents raising a child with autism?

I realize I am being brutal. I apologize for that, but not for the need to be honest. Grab a tissue, have a good cry, and suck it up because this discussion is relevant to your life. It is especially relevant if you are considering having children in the future.

“Current Events” time!

On February 12, 2009, the National Vaccine Injury Compensation Program (Vaccine Court) Special Masters ruled against three families of autistic children, whose histories were chosen as “test cases” in the plaintiffs’ efforts to legally establish causality between thimerosal, MMR, and the children’s regression into autistic symptoms, which happened to occur shortly after receiving the vaccinations.

It was reported that one factor which helped sway the decision against the families is that they claimed their children were “developing normally” prior to the administration of the MMR vaccine. The Masters, upon review of photographs, videos, and medical records of the children in question, concluded that the parents’ claim that their children were “developing normally” was untrue. As I recall, the opinion of the special masters cited things like videos and photographs showing inconsistent eye-contact prior to the MMR administration. This concept of “normal development” hit me like a ton of bricks when I read it.

What does this statement mean, “Developing Normally?”

When I think about this question, the first thing that comes to mind is how shocked I have been and continue to be, when I ask parents the following question, “Did your child have a lot of ear infections during the first four years of life?”

The answer I frequently receive is, “Not a lot. No more than any other children.”
My response: “How many ear infections does your child typically have in a year?”
Typical response: “Three or four.”

What is important about the conversation, as reported above, is that most parents I interview report that their child is having three or four ear infections per year (which are treated with antibiotics) and the parents are also reporting that their child is no different from other children who are “developing normally.”

This is a problem.

Another area where I see a problem involves constipation. My developmental history form specifically asks about constipation and the majority of children I see have had significant problems with the frequency of bowel movements. Several have had to go to the hospital multiple times because their bowels have become impacted. Many parents have told me that they have expressed concerns to their pediatricians or family doctors, regarding their children’s infrequent bowel movements (often once a week or less), only to be told by their trusted physician, “In some children, that’s normal.”

Bowel movements are the body’s way of clearing toxins. (The body also clears toxins through urination and sweating.) Some toxins will ONLY clear the body through bowel movements. If you have toxins building up in the body and the half-life of that toxin is, let’s say 3 days, and the child in question is only having a bowel movement every 7 days, then if that toxin is taken into the body (perhaps through vaccination) and the child does not have a bowel movement for four or five days after taking the toxin it, where do you suppose the toxin goes? It gets stored in the body. Some of it goes into the soft tissues like kidneys and bone marrow. Some of it goes into the brain. Once it’s stored, it’s hard to get it out.

The gist of this is that our children are NOT developing normally if they are having chronic constipation (or diarrhea), or if they are having chronic bacterial and viral infections, upper respiratory infections, bronchitis, tonsillitis, strep, allergies, and asthma. We have an entire generation of children who are more prone to illness than children who are truly “developing normally.” The problem is, we have become so accustomed to this that we now accept this situation as “normal.” This needs to change. (Note: The generation of children who are so prone to infections and gastrointestinal problems coincides with the administration of the Hepatitis B vaccination at birth. For more on this topic, please read the post Vaccines and Autism - Your Child vs. The Greater Good.)

So, going back to the concept of teratology – things that disrupt normal development … In order to prevent more children from being “hit by the bus,” we need to pay closer attention to the things that may disrupt “normal development,” starting before conception even occurs. We need to prepare the incubator. For those children who are already here, we need to assess the status of their overall health and development BEFORE we inject them with multiple viruses simultaneously, and BEFORE we allow anyone to inject them with substances (thimerosal, aluminum, formaldehyde, etc.) that are KNOWN to have teratologic effects. Remember, the first rule of vaccinations is “do not vaccinate a sick child.” The problem is that when we view children with chronic conditions (viruses, bacterial infections, etc.) as “normal,” our perception of what constitutes “a sick child” has been skewed. Those are the children who are being “thrown in front of the bus.” My point: If we identify (accurately) those children who ARE sick, and get them healthy BEFORE administering vaccinations, we are likely to decrease the numbers of children who subsequently regress and end up receiving an autism diagnosis.

Back to the main question at hand – what do you need to do to increase your chances of having a healthy baby – one who stays healthy and does not become part of the estimated 1 in 67 American children with an autism spectrum disorder?

  1. Don’t wait until you are pregnant to start preparing your body. Remember, you are the incubator. Imagine for a moment that you have just delivered a baby that was born premature, and had to be placed in the NICU (Neonatal Intensive Care Unit) of the hospital. When your precious infant is taken from your womb and placed in the incubator in the NICU, you expect that the incubator will be a healthy environment for your fragile infant. By healthy, I mean, you expect that the incubator is free from bacteria (strep, staph, clostridia), viruses (Herpes, Measles, Varicella [Chickenpox], Human Papilloma Virus, Epstein-Barr, Cytomegalovirus), yeast (candida albicans and others), and parasites. You also expect that the incubator your infant is placed in will not be contaminated with heavy metals (lead, mercury, antimony, arsenic, cadmium, aluminum [not technically a ‘heavy metal’]), and that the incubator will not be sprayed with pesticides or contaminated with organophosphates. In essence, what you expect, is that your precious baby will be placed in a pristine environment, in which he or she will be able to develop, to his or her full potential.

If you expect strangers to care for your baby this way, shouldn’t you do everything you can to care for your future child with the same concern?

This entire thought process should start at least one to two years before you become pregnant.
If you live in the Tri-state (Indiana, Kentucky, Illinois), you should know that you live in the coal-burning power plant capitol of the world. If you have lived here for any length of time, you have been exposed to heavy metals (from coal-burning power plants), pesticides and organophosphates (from farming). If you get annual flu shots and have not specified that you want thimerosal-free flu shots, you have had a yearly dose of mercury injected directly into your bloodstream.

If you live in an area where you are regularly exposed to heavy metals and other environmental toxins, you owe it to your future children to find out what toxins have built up in your system, before you make it an incubator for your future child. You would not want your child to be placed in a hospital incubator contaminated with bacteria, viruses, and toxins (metals, pesticides, organophosphates), so why would you allow your child to spend the most important growing stage in just such an environment. If you do not pursue primary intervention that assesses your own body stores of these toxins, that is exactly what you are doing. The incubator is contaminated.

Clean it up before you trust it with the future of your precious baby.

2. If you are the parent of a young child and you are concerned about whether or not to vaccinate him or her, you need to become informed about your options as a parent. One of those options I would encourage is to have your child evaluated first to determine if there are physical problems that should be addressed, prior to vaccination. This may be especially important if your child has gastrointestinal problems, or recurrent viral and/or bacterial infections.

To learn more about assessment for genetic vulnerability and toxic exposures before you get pregnant, or before vaccinating your child, contact Marcella Piper-Terry, M.S.; Biomedical Consultant; marcellaterry@hotmail.com

Sunday, December 28, 2008

Rappoport Raises Important Questions About Vaccines

First, let me say that prior to today, I have never heard of Jon Rappoport.

I have been catching up on emails, which have been sorely neglected during the Christmas break. This evening I clicked on a post from one of the groups I shadow, and followed the link to this, which is said to be an interview of a former vaccine researcher, who does not want to use his own identity because of the consequences of doing so. (If this is true, his decision is completely understandable.)

If this is not true, I still believe it is worth posting, as there are many questions that need to be asked, which may come from more interested people having access to the dialogue (scripted or not).

I encourage parents to research the vaccine issue and make informed decisions before injecting anything into their child's body. Make your own decisions.

Marci


http://avropa.spaces.live.com/blog/cns!5F6877002CEECEB3!1964.entry

Monday, December 15, 2008

O'Bama: Please Change Government Stance on Autism!

Hello All:
There is currently a forum on Change.org - which will allow you to submit or vote for ideas that you believe President-elect O'Bama needs to address for change when his administration is ushered into power. Please go to the following link and vote for change for our children with neurodevelopmental disabilities, including autism:

http://www.change.org/ideas/view/bodies_in_rebellion

And visit the Bodies in Rebellion site to learn more:

http://www.bodiesinrebellion.com/

Here is one of the latests posts on the Change. org site: (Lots of information well worth your time to investigate.)

Blessings.
Marci


For all those that want to understand the realtionship between mercury and autism read the article "Blood Levels of Mercury Are Related to Diagnosis of Autism: A Reanalysis of an Important Data Set.

http://bodiesinrebellion.com/BloodLevelsofMercuryRelatedtoAutism1.pdf

The symptoms of mercury toxicity and autism are almost identical: Thimerosal and autism? A plausible hypothesis that should not be dismissed . Medical Hypotheses , Volume 62 , Issue 5 , Pages 788 - 794 M .

Blaxillhttp://www.nomercury.org/science/documents/Med_Hypoth_Blaxill_Redwood_Bernard.pdfFor

Those that do not understand how serious a problem autism is... just read all these comments parents and relatives are making. Do a search for Dr. Boyd Haley, University of Kentucky, Dr. Mady Hornig, Columbia University, Dr. Thomas Burbacher, University of Washington; Dr. Mark Geier, President of The Genetic Centers of America and David Geier, Vice President of The Institute of Chronic Illnesses, and Dr. Jill James, University of Arkansas. They're just a few of the independent scientists whose findings link unsafe vaccines to neurological damage in our children. Research on vaccines can also be found on this link:

http://www.generationrescue.org/studies.html

The National Autism Association has said that while officials continue to claim that there is no science linking vaccines to autism, many peer-reviewed published studies confirm the connection between vaccinations and neurological injuries.

http://www.national%20autismassociatio%20n.org/library.%20php

Look at what the former head of the NIH has to say:

CBS News Exclusive: Former Head Of NIH Says Government Too Quick To Dismiss Possible LinkSEE VIDEO

http://www.cbsnews.com/stories/2008/05/12/cbsnews_investigates/main4086809.shtml

Healy said that officials have been too quick to dismiss a link between vaccines and autism without ever studying the group that got sick. There never have been studies done on the kids that developed symptoms of autism within a few weeks of being vaccinated. She furthermore pointed out that the Institute of Medicine which produced the cumulative study on vaccines and autism in 2004 refused to 'pursue susceptibility groups.' In other words, they didn't want to find any evidence that linked vaccines to autism. She left us with the haunting statement: 'The question has not been answered.'

In the current issue of U.S. News and World Report, A Government Call for Vaccine Research, Dr. Healy again calls for more research into vaccine safety. This ad ran in USA Today on Feb 12 and 29: Green our vaccines. And administer them with greater care.

http://www.generationrescue.org/pdf/080212.pdf .

It shows what happened to the vaccine schedule since 1983 and it lists the toxic ingredients like mercury, aluminum, MSG, ether, formaldehyde, and anti-freeze commonly found in vaccines. The soaring increase in autism directly coincided with the dramatic escalation of the number of vaccines. It's important to note that there has never been a study done on the cumulative effect of so many vaccines with toxic ingredients so soon on the health of a baby. This is also the time period in which autism went from one in 10,000 children to one in every 150 on average in the U.S. The official autism rate is one in 150 children. In the 1970s, the rate was one in every 10,000 kids. The CDC gave us the figure of one in 150 in Feb. 2007, but it was based on studies of eight year olds done back in 2002 and 2000. Those children are now 14 and 16 years old. This can hardly be considered a true picture of the autism disaster. In Minnesota, the recognized rate is one in every 81 kids. Others put the national average rate at one in every 67 children. Among the Somali immigrants in Minneapolis, the autism rate for American-born Somali children is one in every 28 kids. And these children are ones with classic autism. They could hardly have been misdiagnosed. One in every six schoolchildren now has a diagnosis of a learning disability.

Autism, once a rare disorder, is now so common that everyone knows someone with an autistic child and no one can reasonability tell us why. When we read about autism, it's always about kids with autism. Where are the 30, 50, and 70 year olds with autism like we see in our children? We should all be worried about what will happen when hundreds of thousands of children with autism age out into the welfare system. They'll become the responsibility of the taxpayers. We do not currently have a significant adult population with autism, but that will soon be changing and the cost of their support and care will be massive. Findings by Michael Ganz at Harvard make a chilling prediction of the future cost to our society. Ganz projects that it will cost about $3.2 million to take care of ONE autistic person over his or her lifetime. His findings are felt by others to be a gross underestimate of the eventual autism price tag.

Autism Has High Costs to U.S. Society, press release of Tuesday ...

The words of Laura Bono of the National Autism Association are a grim forecast for the future: "As those children reach adulthood, the U.S. is ill-equipped to care for them. Not only do we not have enough services for adults now, the light at the end of the tunnel is a train. Frankly, we don't know what we're going to do."

Click the link below to view this discussion.

http://www.change.org/ideas/view/bodies_in_rebellion

Thursday, November 6, 2008

Lead in Wild Game, Venison, Be Careful What You Eat!

The following article is important, especially for those of us with sick children, who also live in areas of the country where wild game consumption is part of how families get by.

The take-home message is: Think about every aspect of your life, especially if you have a child with autism or other developmental disability. Also, please remember that lead only shows up in blood for a short period of time after exposure. It is stored in soft tissues, including bone marrow and the brain, for decades after initial exposure, and the effect is cumulative. In other words, it adds up. Just because it doesn't show up in blood doesn't mean it's not in your body (or your child's body).

Lead is also passed from mother to child in utero and through breast milk, so if you have eaten a considerable amount of wild game in your life and are thinking about getting pregnant, you may want to have a hair analysis and urine provocation test prior to conception. Get the lead out before you pass it on to the next generation.

Take care.
Marci

Study links lead in blood to wild game consumption

By JAMES MacPHERSON, Associated Press Writer James Macpherson, Associated Press Writer – Wed Nov 5, 8:58 pm ET

BISMARCK, N.D. – North Dakota health officials are recommending that pregnant women and young children avoid eating meat from wild game killed with lead bullets.

The recommendation is based on a study released Wednesday that examined the lead levels in the blood of more than 700 state residents. Those who ate wild game killed with lead bullets appeared to have higher lead levels than those who ate little or no wild game.

The elevated lead levels were not considered dangerous, but North Dakota says pregnant women and children younger than 6 should avoid eating venison harvested using lead bullets.
Those groups are considered most at risk from lead poisoning, which can cause learning problems and convulsions, and in severe cases can lead to brain damage and death.

The study, conducted by the federal Centers for Disease Control and Prevention and the state health department, is the first to connect lead traces in game with higher lead levels in the blood of game eaters, said Dr. Stephen Pickard, a CDC epidemiolgist who works with the state health department.

A separate study by Minnesota's Department of Natural Resources previously found that fragments from lead bullets spread as far as 18 inches away from the wound.

"Nobody was in trouble from the lead levels," Pickard said. However, "the effect was small but large enough to be a concern," he said.

Pickard said the study found "the more recent the consumption of wild game harvested with lead bullets, the higher the level of lead in the blood."

Officials in North Dakota and other states have warned about eating venison killed with lead ammunition since the spring, when a physician conducting tests using a CT scanner found lead in samples of donated deer meat.

The findings led North Dakota's health department to order food pantries to throw out donated venison. Some groups that organize venison donations have called such actions premature and unsupported by science.

Tuesday, October 7, 2008

Bernard Rimland, Ph.D., Winner of the Noble Prize

With yesterday's announcement of this year's winners of the Nobel Prize in Medicine, I think it is appropriate to honor the man who, sadly, will never see the full effects of his lifetime commitment to individuals and families impacted by autism. This man worked tirelessly and passionately in his quest for the true causes and effective treatments of autism to be accepted and widely applied so that more children could live free from constant pain and become independent, contributing members of society.

Today's post is dedicated to Bernard Rimland, Ph.D (1928 – 2006). The bulk of this post is a reprint of Dr. Rimland's testimony in 2000, before the House Committee on Government Reform. Given the current state of our economy and the recent 700 billion dollar buyout, I believe the timing of this post is especially relevant.

Here's to you, Bernie. Thank-you. You did not live long enough to receive the Nobel Prize, but if they gave one for being a Noble Man, you would have no competition whatsoever.


Testimony of Bernard Rimland, Ph.D. Before House Committee on Government Reform

April 6, 2000

The Autism Increase: Research Needed on the Vaccine Connection

My name is Bernard Rimland. I am a research psychologist (Ph.D.). and am Director Of the Autism Research Institute, which I founded in 1967. I am also the founder of the Autism Society of America (1965), and the editor of the Autism Research Review International. My book, Infantile Autism: The Syndrome and Its Implication for a Neural Theory of Behavior (1964) is widely credited with changing the field of psychiatry from its claim that autism is an emotional illness, caused by destructive mothers, to its current recognition that autism is a biological disorder. I have lectured on autism and related problems throughout the world, and am author of numerous publications. I served as primary technical advisor on autism for the film Rain Man.

My son Mark was born in 1956. It was obvious from birth that this perfectly normal-looking infant had something drastically wrong with him. I had earned my Ph.D in experimental psychology 3 years earlier and had never encountered the word autism. Our pediatrician, with 35 years of experience, had never heard of autism either. Autism was extremely rare then - it is extremely common now.

Some supposed experts will tell you that the increase reflects only greater awareness. That is nonsense. Any pediatrician, teacher or school official with 20 or more years experience will confirm what the studies tell us: there is a real increase in autism and the numbers are huge and growing. The epidemic is serious and world-wide.

Soon after my textbook on autism was published in 1964, I began to hear from other parents. Many parents told me that their children were normal until getting a triple vaccine - the DPT shot. In 1965 I began systematically collecting data on the symptoms and possible causes of autism: In 1967—33 years ago—I began querying the parents, specifically about the child's response to the DPT shot. Many had reported marked deterioration.

During the past few years the Autism Research Institute has been flooded with an upsurge in pleas for help from parents throughout the world - from wherever the World Health Organization vaccine guidelines are followed. The majority of these parents say their children were normal until getting the MMR - another triple vaccine.

Let me dispel several myths promoted by those who deny the autism-vaccine connection:

  1. They claim the vaccines are safe, but physicians are indoctrinated to disbelieve claims of harm and are not trained to recognize nor required to report any adverse reactions. From 90% to 99% of the adverse reactions reported to doctors are never reported by those doctors to the government's extremely lax Vaccine Adverse Event Reporting System, known as the VAERS.

  2. They say that the suspected linkage between the MMR vaccination and autism has been disproved by a study conducted by Brent Taylor and his colleagues in London, and published last year in The Lancet. The Taylor study is seriously flawed in many ways, as had been noted in a number of letters to the editor of The Lancet and in a number of additional letters on the subject which have been posted on the internet. It was subject to strong attack at a recent meeting of the British Statistical Society. I have been a full-time researcher my entire professional life, for almost 50 years, and I respectfully asked Dr. Taylor for a copy of the data so that I could reanalyze them. He refused this ordinary professional courtesy, and I have subsequently written to the editor of The Lancet requesting that an impartial committee be asked to reexamine Dr. Taylor's statistical methods. If he refuses again, I urged The Lancet to retract his paper.

  3. They say that autism has a large genetic component, and therefore vaccines must play a minimal, if any, role in the causation of autism. My book Infantile Autism, published in 1964, was the first systematic attempt to marshal the evidence for genetics as a contributing cause of autism, so I am certainly not hostile to that idea. However, genes do not begin to account for the huge increase in the incidence of autism, ranging from 250% to 500% in various places. I might add that we have just reviewed all of the recent genetic studies for the next issue of the Autism Research Review International, which I edit. The results are spectacularly inconsistent. The best guess is that there are at least 20 different genes involved in the causation of autism. Gene therapy is decades off, and may be infeasible.

  4. They claim that autism naturally occurs at about 18 months, when the MMR is routinely given, so the association is merely coincidental and not causal. But the onset of autism at 18 months is a recent development. Autism starting at 18 months rose very sharply in the mid-1980s, when the MMR vaccine came into wide use. A coincidence? Hardly! See the graph below.

Autism is not the only severe chronic illness which has reached epidemic proportions as the number of (profitable) vaccines has rapidly increased. Children now receive 33 vaccines before they enter school - a huge increase. The vaccines contain not only live viruses but also very significant amounts of highly toxic substances such as mercury, aluminum and formaldehyde. Could this be the reason for the upsurge in autism, ADHD, asthma, arthritis, Crohn's disease, lupus and other chronic disorders?

As a parent and as a full-time professional researcher, I am bitterly disappointed with the medical establishment's dismal record with regard to autism over the past 60 years. The medical schools, as well as the governmental agencies, have consistently supported outmoded, unproven and even disproven theories from the very beginning, and have actively opposed the most promising approaches for the treatment of autism. They supported the psychoanalytically-based theories which held the mother responsible for causing autism through her supposedly hostile attitude toward the child. They opposed the use of behavior modification, the most uniformly beneficial treatment for autism, by claiming that it neglected the deep-seated emotional blocks that were supposedly at the root of autism. They have ignored, and continue to ignore, the long series of studies conducted both in the U. S. and Europe showing that the elimination of foods containing gluten and casein from the diet brings about marked improvement in many autistic children. They have consistently ignored the series of 18 consecutive studies, conducted by researchers in 6 countries, which showed that almost half of all autistic children and adults respond favorably to high doses of vitamin B6 and magnesium., with no adverse effects. Eleven of these studies were double-blind placebo-crossover experiments. There is no drug that comes close to B6/magnesium in terms of safety, efficacy and positive research findings.

Tens of millions of dollars have been spent on non-productive lines of research, while virtually no money at all has been given to research on the methods of alternative medicine, which are far more promising in terms of both safety and efficacy.

The most interesting questions are not being asked: Why does the majority of the population survive such epidemics as autism, the bubonic plague, Legionnaires' disease, polio and AIDS, while relatively few succumb?

The answer is that the survivors have a healthy, effective immune system. Would enhancing the immune system decrease the likelihood of adverse reactions to vaccines (including the anthrax vaccine - DOD please note!)? Very probably. It is well known that the immune system must be adequately supplied with many nutrients if it is to function properly, including especially vitamins A, C, E, B6 and a number of minerals, including zinc, magnesium, and selenium. Nutritional levels of these substances are not only harmless, they are essential to good health. Since people do not change their diets readily, I believe that foods should be fortified with these nutrients - especially foods that will be consumed by infants and children. Research along these lines - as well as on the safety of the vaccines - is desperately needed.

As a parent and a researcher, I believe there should be a marked redirection of effort and funding, along the lines suggested above.

Committee on Government Reform

2157 Rayburn House Office Building

Washington, DC 20515

(202) 225-5074


Reprinted from:http://www.house.gov/reform/hearings/healthcare/00.06.04/rimland.htm

Wednesday, October 1, 2008

The Flu Vaccine - Is It Worth It? A Cost-Benefit Analysis

A few weeks ago I posted an article on this blog entitled, "Is There Thimerosal in the Flu Vaccine." At that time, it had just been announced in the media that the CDC was stepping up efforts this year "like never before" to ensure that every man, woman, and child (including babies and the as-yet unborn) receive the flu vaccine. As I wrote then, this is extremely concerning, especially when it comes to vaccinating pregnant women in the second trimester, and vaccinating babies and children with something that contains mercury. I cannot understand why, after the CDC finally agreed to remove thimerosal from the childhood vaccine schedule, they would now recommend vaccinations for babies and children that still contain this extremely toxic heavy metal.

I know this is a topic I already covered, but it is one that is so important it's worth expanding on.

Today was one of those rare days when, having attended the Health Fair at USI, I found myself at home with my feet up when the news came on. One of the stories covered by Ann Komas, anchor for WFIE News, reported on a "Drive-In Flu Clinic" that took place today in Indianapolis. People are lining up in their cars, simultaneously rolling down their windows and rolling up their sleeves to get the flu vaccines they have been so fervently advised to receive.

I wonder how many of them know about the thimerosal.

As my 8 year-old watched the news report she screwed up her face and said, "EEEWWWW! Gross!!!" I was very relieved to be able to tell her that she didn't have to worry about that because she is not getting a flu shot.

The government has GREATLY over-stated both the severity of the threat to healthy individuals from the flu, and the efficacy of the flu vaccine in preventing flu-related deaths. If you would like to read a fascinating article, written by research-physicians that will help you to make an informed decision about whether or not to submit to the government's push, click here.
If you don't care to read the entire article, here are some things to consider:

This information is taken directly from the article, "A Shot of Fear," written by By Steven Woloshin, Lisa M. Schwartz and H. Gilbert Welch, published in 2005 in The Washington Post.
  • According to the CDC, 90 percent of flu-related deaths occur among people age 65 years and older. Based on this information and the age distribution of the population, the chance of a flu-related death for people in that age group is about one in 1,000. Another way of saying this is that the chance of not dying from flu for those 65 and older is about 999 out of 1,000. (For context, the chance of a flu-related death is slightly lower than the chance of dying from a fall or other accident.)
  • For people younger than 65 (including children), the chance of a flu-related death is much smaller -- about one in 100,000.

The authors of the above-reference article point out that the wording of papers published in some highly-regarded, peer-reviewed, medical journals is misleading and overstates the effectiveness of the flu vaccination.

  • For example, a 2003 study published in the New England Journal of Medicine observed that the flu vaccine was associated with a 50 percent reduction in the overall death rate (that is, death from heart disease, stroke, cancer and all other causes combined). To attribute an effect of this magnitude solely to the flu vaccine is ludicrous: Flu-related deaths make up less than 2 percent of all deaths. If the claim were accurate, the vaccine's power would dwarf that of any other medical intervention.

The authors go on to point out that for some, it is not necessarily the concern of death from the flu that drives them (now, literally) to get the vaccination. Many Americans roll up their sleeves and hold their screaming children down to receive the flu shot because they don't want to be sick and don't want to miss work or school.

  • The authors write, "Many may get flu shots simply to avoid getting sick. The Cochrane Collaboration identified more than 20 randomized trials addressing this question. The overall chance of developing "clinical" flu was 19 percent in those chosen, again by chance, to receive the recommended flu vaccine vs. 23 percent in the control groups."

If I'm interpreting this correctly, having received the flu vaccine conferred a 4% advantage when it came to actually getting sick, when compared to those who did not receive the flu vaccine.

Read on:

  • Studies have also measured another outcome: how vaccination affects days lost from work. On average, there are about 0.16 fewer days lost from work per person vaccinated. Another way of saying this is that about 5 percent of those vaccinated avoid missing about three days of work because of the flu. (That is, 0.16 days divided by the 5 percent who benefited from vaccination equals 3.2 days.) The other 95 percent vaccinated got no benefit.

For anyone who is concerned about injecting mercury into yourself or your child, PLEASE ask yourself, "Is it worth it?" before obediently and blindly rolling up your sleeves. For pregnant women and parents of small children, PLEASE, JUST SAY "NO."

Marcella Piper-Terry, M.S.

Monday, September 22, 2008

SUCCESS RATES FOR BIOMEDICAL TREATMENT OF AUTISM

The success rate experienced by families who undertake a biomedical approach for autism is often excellent, for those who stick with it. A major problem is that by the time people hear about Biomedical interventions for Autism, they have been convinced by their pediatrician or family doctor that there is nothing that can be done for autism, and since we live in a society that tends to value a physician's word as being on par with "the word of God" this can be a big hurdle to overcome.

A related problem is that most traditionally-trained physicians are not taught about nutrition or methods of disease prevention. They are taught to suppress symptoms with pharmaceutical drugs and to remove body parts when they decay or stop working - often because the symptoms of underlying disease are masked with pharmaceutical drugs while things continue to get worse.

Physicians and clinicians who employ biomedical treatments for autism (and ADHD, ADD, Bipolar Disorder, Chronic Fatigue, Fibromyalgia, etc.) subscribe to the belief that the most important thing is "FIRST, DO NO HARM." As is the case when considering any kind of intervention, we must ask ourselves if any risks associated are greater than any potential benefit that may come from taking the particular course of action. This is referred to as a “cost/benefit analysis.” In any cost/benefit analysis, you want to make decisions where the potential benefit outweighs the potential cost. I believe this is especially true when considering a treatment approach for a sick child.

The Autism Research Institute has been collecting data from parents for several years, regarding the success rates of various interventions, both biomedical and pharmaceutical. To view the complete list of parent ratings for biomedical and pharmaceutical interventions, click the following link: http://www.autism.com/treatable/form34qr.htm

Data from more than 26 thousand of parents indicates that biomedical interventions, such as dietary changes, antifungals, targeted supplementation with specific vitamins, minerals, amino acids, enzymes, and probiotics, and chelation therapy to remove heavy metals, organophosphates, and pesticides, are many times more successful than treatment with psychotropic medications AND they are far less likely to cause negative reactions in the children.

For example, Adderall, Ritalin, and Risperdal are three of the most frequently prescribed medications given to children with autism to help control behavior (suppress symptoms). Parent ratings regarding the success rates for these medications are as follows:

Adderall: of 775 cases, 43% got worse; 32% got better; 25% no effect.
Adderall: Better:Worse Ratio = 0.8:1

Ritalin: of 4127 cases, 45% got worse; 29% got better; 26% no effect.
Ritalin: Better:Worse Ratio = 0.7:1

Risperdal: of 1038 cases, 20% got worse; 54% got better; 26% no effect.
Risperdal: Better:Worse Ratio = 2.8:1

Note: "got worse" in these parental reports relates solely to the worsening of problematic behaviors. To read further information regarding potential side effects of these and other psychotropic medications click the following link:
http://www.autism.com/ari/adverse_reactions.html

Constipation and diarrhea are rampant in a vast majority of kids with autism, as are problems with eczema, skin rashes, and environmental and dietary allergies. Because 70% of the body’s immune system is located in the gastrointestinal tract, problems related to GI injury and inflammation are often the source of a domino-like cascade of issues as the child becomes immune-compromised and increasingly susceptible to bacterial, viral, and parasitic infections.

Dietary changes often help to correct issues in the gut and are therefore frequently targeted initially in biomedical treatments for autism. Parent ratings regarding the success of dietary interventions are as follows:

Remove Milk/Dairy: of 6360 cases, 2% got worse; 52% got better; 46% no effect.
Remove Milk/Dairy: Better:Worse Ratio: 32:1

Remove Wheat: of 3774 cases, 2% got worse; 51% got better; 47% no effect
Remove Wheat: Better:Worse Ratio: 28:1

Gluten Free/Casein Free Diet: of 2561 cases, 3% got worse; 66% got better; 31% no effect
GF/CF Diet: Better:Worse Ratio: 19:1

Candida Diet (Yeast-Free): of 941 cases, 3% got worse; 56% got better; 41% no effect
GF/CF Diet: Better:Worse Ratio: 19:1

Food Allergy Treatment: of 952 cases, 3% got worse; 64% got better; 33% no effect
Food Allergy Treatment: Better:Worse Ratio: 24:1

Yeast overgrowth (Candida Albicans) is a very common finding in children with autism, and is one of the effects of their weakened immune systems and resultant administration of antibiotics to fight recurrent bacterial infections. Physicians who adhere to the Defeat Autism Now! approach very often order laboratory testing to determine if yeast is problematic, and if so, will treat accordingly with antifungal prescriptions. Parental reports of success with antifungal treatment are as follows:

Antifungals: Diflucan: of 653 cases, 5% got worse; 57% got better; 38% no effect
Antifungals: Diflucan: Better:Worse Ratio: 11:1

Antifungals: Nystatin: of 1388 cases, 5% got worse; 50% got better; 44% no effect
Antifungals: Nystatin: Better:Worse Ratio: 9.7:1

Specific nutritional therapies and supplementation targeted for the individual child is a cornerstone of biomedical treatment of autism. One must be careful in giving vitamins and it is not advised to do so unless you know what you're doing. Having said that, one of the most frequently recommended supplements for autism is Cod Liver Oil or Fish Oil (must be treated to remove mercury - don't buy cheap fish oil!!!!). Other Fatty Acids are also supplemented, based on lab results and detailed developmental history and family history. Parent ratings for the success of these interventions are as follows:

Cod Liver Oil: of 1681 cases, 4% got worse; 51% got better; 45% no effect.
Cod Liver Oil: Better: Worse Ratio = 13:1

Fatty Acids: of 1169 cases, 2% got worse; 56% got better; 41% no effect.
Fatty Acids: Better: Worse Ratio = 24:1

Heavy Metal toxicity is a very common finding in children with autism, as is shown on hair analysis, through urine provocation testing, and now with porphyrin tests. Chelation (removal) of heavy metals and other toxins is often a very effective component of biomedical treatment for autism and is used when indicated, based on laboratory findings. Parent ratings for success rates of chelation treatments are as follows:

Chelation: of 803 cases, 3% got worse; 74% got better; 23% no effect.
Chelation: Better:Worse Ratio = 24:1

There are many other intervention strategies that are helping to recover children from an autism diagnosis and Defeat Autism Now! clinicians and researchers all over the globe are working tirelessly in their efforts.

If you ask a parent whose child disappeared for years, who made no eye contact, spoke no words, and spent hours each day watching his or her fingers and spinning in circles, that parent's response to the question, "How successful is biomedical treatment?" will depend on his or her own experience. If you ask one of the parents I met at a Defeat Autism Now! conference, who's children actually got on the stage, made eye contact with the interviewers, and answered questions in front of hundreds of other parents and professionals, the answer, I'm sure, would be "Extremely successful!"

Biomedical interventions do not work for everyone, and the results are varied, depending on the particular child. This is also why the GF/CF diet or SCD diet or LOD diet, or whatever, is not THE answer for everyone. Individual children need to be treated as individuals. Treatments need to be tailored, based on the child’s own developmental and medical history, observations of parents, and results of laboratory tests that assess specific areas for intervention.

Every child is different and EVERY CHILD WITH AUTISM IS DIFFERENT. That's why the standard medical response, "There's nothing you can do for autism" makes no sense.

Autism is treatable. Recovery is possible. One child at a time.

To view videos of some of the many children who have been successfully recovered from an autism diagnosis by implementing some of the above biomedical interventions, please click on the links below. Head’s up: You might want to grab a box of tissues for these.

This information is 4allofyou!

Blessings,
Marci

Baxter's Recovery from Autism:
http://www.youtube.com/watch?v=UsmBoGPzx9U&feature=related

Ethan's Recovery from Autism:
http://www.youtube.com/watch?v=aEw0Y5LJ6vg

Edward's Autism Journey and Recovery:
http://www.youtube.com/watch?v=jtHvtWBv7aM

Friday, September 19, 2008

NIMH Cancels Chelation Study While Dr. Proffit Heads for the Bank

Guess what? A couple of days ago the media announced, "A government agency has dropped plans for a study of a controversial treatment for autism that critics had called an unethical experiment on children. The National Institute of Mental Health said in a statement Wednesday that the study of the treatment - called chelation - has been abandoned."

I'm shocked. (that's sarcasm)

Okay. After about ten minutes of research, here's what I found:

First, the NIH study was called off because an experimental psychologist at Cornell University found that rats who were administered a chelating agent (succimer) specifically meant to chelate lead, suffered from learning disabilities that are long-lasting if they were administered the drug when they did not have lead poisoning to begin with. Towards the end of the article, it notes that the most likely reason for this is because succimer depletes zinc and iron and the resulting deficiencies of these minerals are what probably caused the cognitive problems. DUH!!!

Two problems with NIH calling off the chelation study as a result of the above:

1. ANY doctor trained by the Autism Research Institute (Defeat Autism Now!) KNOWS that one of the FIRST things to do is assess the child's nutritional status, including testing for zinc and iron levels. AND, they know that chelation with ANY agent is NOT an option unless the child has DOCUMENTED heavy metals in the body. This is WHY we do hair analysis AND urine provocation AND fecal metal tests. Any physician who uses chelation to treat heavy metals in the absence of proof that there ARE heavy metals should NOT be using chelation. This is akin to prescribing chemotherapy for cancer to someone who LOOKS like they may have cancer, without ever doing the tests to determine if the cancer really exists. Chemotherapy drugs are some of the MOST toxic drugs on the planet, but nobody is suggesting that we not use them! (At least nobody in "mainstream" medicine)

2. A more appropriate design for the NIH study, instead of administering chelating agents to children who do not have heavy metals, would be to document that ALL children in the study have heavy metals in their systems and then administer ALL of the same interventions, including addressing mineral and nutritional deficiencies in ALL participants. The experimental condition should be those children who receive chelation, while the control group should be a group of children who are matched on all other interventions but do not receive chelation. In this way, there would be no problems associated with the fact that the control group did not have heavy metals AND there would be no problems associated with mineral depletion because, just as it is in the clinical setting in hundreds of Defeat Autism Now! trained physicians, THE MINERAL LEVELS WOULD BE CONSISTENTLY MONITORED TO ENSURE THEY ARE NOT BEING DEPLETED BY THE DRUGS! AGAIN, DUH!!!!!!

Why can't NIH figure this out?

I suspect this is because the powers-that-be do not understand clinical nutrition. This is most likely because traditionally trained physicians practicing traditional western medicine are trained in medical schools that are funded by pharmaceutical companies, and most M.D.s have never taken a SINGLE course in nutrition. It is NOT REQUIRED. No WONDER we have so many drugs that have been pulled from the market after significant numbers of patients have DIED because of side effects of the drugs, which WERE approved by the FDA.

Care for some Vioxx, anyone?

It seems to me that the reason the powers-that-be do not want chelation to become more readily available is because if they did, more children with heavy metal poisoning would have access to this very effective (and very safe) treatment. That would mean that there would be hundreds of thousands of children whose levels of mercury (and lead and antimony) would be DOCUMENTED, and doctors like Paul Offit, who happens to sit on the IOM (Institute of Medicine), which has declared that an association between thimerosal (mercury) and autism does not exist, can continue to rake in the dough at the expense of our children. For those who don't know, Dr. Paul Offit is not only the most vocal opponent of the mercury/autism connection, he is also one of the recipients of 182 MILLION DOLLARS, for royalties to the Rotavirus Vaccine, of which Dr Offit is a patent-holder. HMMMMNNNNN.........

Has anyone ever heard the saying, "The Fox is Guarding the Henhouse?"

WATCH THIS:

http://www.youtube.com/watch?v=K1Hw-Q23S_s

Once again, I advise parents to DO YOUR OWN RESEARCH and do not rely on the misinformation being put out by those like Dr. Offit, who have SO MUCH to gain if our children remain poisoned by heavy metals.

To read more about chelation and the truth about the scare tactics, please visit the Autism Research Institute's website and read the following two articles:

http://www.autism.com/treatable/chelation/chelationsafety.htm

http://www.autism.com/ari/editorials/ed_chelationstory.htm

Marcella Piper-Terry

Wednesday, September 17, 2008

An Open Letter to Governor Mitch Daniels Regarding Thimerosal and Environmental Mercury





AN OPEN LETTER TO MITCH DANIELS, GOVERNOR OF INDIANA:
Governor Daniels:

I have lived in the state of Indiana for seven years. There are a few questions I, as one of your constituents, would like for you to address.

First, I would like to know why Indiana, and particularly Southwestern Indiana, needs more coal burning power plants, and please do not tell me it's because it's good for our economy.

  • With the majority of counties in SW Indiana out-of-compliance with the EPA's Clean Air Act our economy and infrastructure is no doubt on the losing end due to loss of federal funding.
  • The cost of lost work days by our citizens who are too sick to work, due to the effects of heavy metal poisoning and cardiopulmonary damage from particulate matter surely cannot be good for our economy.
  • The increase in the incidence of autism, which has been shown to be related to the proximity to coal-burning power plants, cannot be good for our economy, especially when you consider that there are no daycare facilities who will accept children with "behavioral problems." Mothers of sick children frequently have no other option but to withdraw from the workforce and stay at home to care for their child. Statistics reveal an 85% divorce rate in families of children with autism - they succumb to the unrelenting stress, which encompasses EVERY aspect of EVERY hour of EVERY DAY. There are no state provisions for respite care, and no state funded programs for adolescents and adults with autism who age out of the system at eighteen. Families are left holding the bag and footing the bill. Surely this is not good for our economy in the state of Indiana.

And, speaking of sick children, I for one do not think it is coincidental that the top five agricultural crops grown in Indiana (and exported all over the world) are the same top five foods that have been demonstrated to cause intestinal problems, including colic, chronic constipation, and diarrhea in children with autism. It is also not coincidental that when these five foods (wheat, dairy, corn, soy, and eggs) are removed from the diets of children with autism, more than 65% of those children improve significantly, some to the point where they actually LOSE their autism diagnosis. Do you really believe this is a coincidence? What is going to happen to the economy in Indiana when the rest of the world realizes that it may not just be the food that's making them sick, but the poisons that are in the food? SURELY THAT'S NOT GOING TO BE GOOD FOR OUR ECONOMY!

As I am sure you know, the heavy metals that go into our air and water also go into our soil and from there, into the food we grow. As the photographs above clearly show, there has been no effort in this state to ensure that our food supply is spared from the toxic plumes being spewed from the coal-burning power plants. There has also apparently been no concern about locating power plants within spitting distance of elementary schools where our children are required by state law to spend a certain amount of time outdoors, running, playing and practicing sports and other activities. Isn't this inconsistent with your push for Healthy Hoosiers?

With the ever-increasing frequency of Ozone and PPM days, during which "sensitive groups," including children, are advised to stay indoors, it's no wonder Indiana ranks at the top of the charts for citizens who qualify as morbidly obese. With the serious health problems associated with that condition, I can't fathom how this outcome could contribute to a strong economy for the state.

With the neurological damage caused by heavy metals, including the loss of IQ points associated with even minute exposure to lead, we are spending increasing amounts of our tax dollars on special education programs, to remediate the damage done by the power-plants and their toxins. How is that good for our economy?

In Vanderburgh County, we are currently on target to surpass last year's suicide rate, and once again reclaim our title as the county with the highest suicide rate in the nation. Two years ago, the rate was four times the national average - AND the rate in Vanderburgh County was four times the rate of the state of Indiana. Of course, many of those people who killed themselves may have been on the public assistance roles, due to physical and mental health problems, so I guess their deaths could conceivably be good for the economy on some level, but I sincerely hope this is not one of the areas you would consider a "positive" outcome of increased coal production.

A related issue is the extreme amount of Vanadium introduced into our environment as a result of coal production. With excess vanadium resulting in the depletion of lithium, this is a very likely contributor to the suicide rate, as depletion of lithium is associated with bipolar disorder. Of course, you may not be aware, or may have forgotten the outcries for more psychiatric facilities after the suicide death of 10 year-old DeTwain Barnett in May 2007. Unfortunately, until the environmental poisoning is decreased, the suicide rate is not likely to decrease, nor is the shortage of mental health providers in this area.

A second question I have is related to your former position as Senior Vice President of Marketing Strategy for Eli Lily, and your subsequent position as Budget Director for the Bush White House. In my attempt to understand the Lily Rider, which was sneaked into the Homeland Security Act, I did find a newspaper article that printed your adamant denial regarding any knowledge or responsibility for this rider, which was meant to deny families of children poisoned by thimerosal (mercury) in vaccines their right to due process in a Court of Law. My understanding of this rider is that it is called "The Lily Rider" because Eli Lily was the developer of thimerosal and so by denying families their day in court, the rider protected the pharmaceutical giant, which just happened to be your former employer.

Two questions:

1. If not you, then who?

2. Do you own stock in Eli Lily?

One final question I'm pondering is this: Given the obvious health problems and associated economic costs to a state from being the "coal-burning power plant capital of the world," and, given the documented association between mercury and coal-burning power plants AND autism, WHY WOULD THE GOVERNOR OF ANY STATE WANT TO INCREASE MERCURY IN THE ENVIRONMENT OF HIS OR HER CONSTITUENTS?

Of course, I could understand why, if the governor in question had reason to confound the evidence regarding whether or not thimerosal (mercury) in vaccines had anything to do with the epidemic of autism in America's children.

If not you, then who?

Looking forward to your assistance in sorting out this confusion.

Sincerely yours,
Marcella Piper-Terry

Tuesday, September 16, 2008

Diet and Autism, the GFCF Cult


The photos above show the corn, soybean, and wheat fields located between Marr's Elementary School and the smokestacks belonging to Vectren Energy's Brown Power Station located on the west side of Evansville, Indiana. These photos were taken in July 2008.
Today's post:

This post addresses some questions people have been asking about the Gluten-Free/Casein-Free Diet and why it is so important in recovering kids diagnosed with Autism. By the way, all of this information also applies to ADHD, ADD, Asperger's Syndrome, and other forms of Pervasive Developmental Disabilities Diagnoses.

When Jenny McArthy first came out publicly with her son’s story, she took a huge personal risk, braving all sorts of criticism from mainstream medicine and groups who believe that by improving a child’s state of wellness, we are somehow saying that we do not accept our children’s individuality. While I applaud Ms. McCarthy’s willingness to make herself a target for all kinds of backlash, one concern I have is the extreme emphasis on GFCF (Gluten-Free, Casein-Free), or for that matter SCD (Specific Carbohydrate Diet), LOD (Low Oxylate Diet), etc., as THE DOCTRINE everyone must follow. It's not that simple. If you start removing things because of sensitivities, without also focusing on improving digestion, clearing constipation, and healing the lining of the intestinal tract, eventually you end up with an even more limited list of foods because the child will keep developing new sensitivities.

DAN! has been hesitant (in my opinion) to recommend the use of digestive enzymes, which seems to be because they do not want people to use the enzymes as a "lazy" alternative to cleaning up the diet. Cleaning up the diet is a very important thing to do - by getting rid of artificial dyes, artificial preservatives, white flour and sugar, artificial sweeteners, fermented foods, yeasty foods, and basically eliminating things your child is obviously addicted to (this often means wheat and cow's milk), allergic or highly sensitive to (frequently, soy, corn, & eggs).

Personally, as a resident of the Midwest who drives by multiple corn, soy, and wheat fields, as well as coal-burning power plants on a daily basis, I have strong suspicions that the extremely frequent "food allergies" and "food sensitivities" to these five foods in particular, may have more to do with where they are grown and the environmental toxins, than with the food itself. Our food is being grown in soil that is polluted with heavy metals. The corn being grown in this region is fed to the cows and chickens from which our milk and eggs are derived.

Back to today's question and why Dietary Interventions are so important:

Many children with autism self-limit their diets to the point where the only foods they will accept are wheat and dairy-based. The problem is that with a leaky gut - caused by candida overgrowth - among other things, gluten and dairy are not broken down effectively and they are misidentified by the body as opiates. In combination with the alcohol produced by the yeast, you get a kid who is mixing drugs and alcohol and no wonder they're spaced out! And no wonder they have such high pain tolerance. Opiates are what we give to adults after back surgery!

The GFCF diet works so well because it removes the sources of opiates. This is why you may initially see an increase in negative behavior and hyperactivity when removing wheat and dairy from the diet. They are going through withdrawal - aka "cleansing." This is also why the diet is so difficult to stick to because like all addicts, when the kid is not closely supervised, he or she is going to "drug-seek." Lock your cabinets and put a chain on the freezer door!

Many children, especially those who are further to the right on the continuum between autism and ADHD, will benefit significantly from the addition of digestive enzymes, which help to break down particular offending proteins (in most cases, gluten & casein). Others, who are facing more significant challenges, will need to be completely free of dietary sources of gluten and casein. For some, even a minute amount can be problematic and the negative effects can last for several weeks after a single dietary infraction. The only way to know where a child falls on the continuum is through thorough examination of the developmental history and by gathering objective data through laboratory testing.

Many older children, and especially those who are high-functioning, make the connection between how good they feel when they abstain from problematic foods and take digestive enzymes, versus how bad they feel when they don't. As a result, they are much more likely (at least in my house) to be the ones to say, "Mom, I need an enzyme!" Does that make me lazy? Okay. It also helps to keep me - and my kids - closer to the "sane" area on the continuum.

BALANCE is the key! Not rabid adherence to any particular diet just because that's what worked for someone else's child. In most children I have seen, once yeast is eradicated and constipation and/or diarrhea are under control, you can often re-introduce foods, especially if you are supplementing with enzymes to break them down. My kids have been taking enzymes with every meal and snack for the last few years, along with probiotics, CLO, and full-spectrum vitamin/mineral/amino acid supplements. As a result, they CAN eat cake and ice cream at parties. The only time we really have problems with dietary infractions is if we run out of enzymes! Then there was the time my husband bought a package of those frozen "cherry" slushy things - even enzymes couldn't handle that one. He has learned his lesson about red dye, believe me!

Being a mom (or dad) of a sick kid makes you nuts. Accept it and roll with it. You don't have to necessarily join the GFCF or SCD cult in order to be successful at motherhood (parenthood) - even if your kid happens to have autism. The best dietary advice (in my opinion and experience) is to stick to the outer aisles of the grocery store. Shun anything in a cardboard box. You may as well feed them the box; it has more nutrition and fewer preservatives and neurotoxins. Avoid cans as much as possible. Read labels. The more ingredients something has in it, the less you want it. If you can't pronounce it your body probably can't recognize it and won't know what to do with it. When your body can't figure out what to do with it, valuable energy is wasted trying to get rid of it and it gets lumped in with all the other toxins in the heap.

When you have a child with autism, "Diet" is about controlling that which is possible for us to control. "Perfection" and "Diet" only belong in the same sentence when you're talking about anorexia and bulimia. We're all too obsessive-compulsive already. Where do you think our kids got it from?
If your child does not respond to the more general dietary interventions, then you probably need to consider formal laboratory testing for food allergies (IgG – not IgE) and enlist the help of medical professionals to eliminate problematic foods while ensuring your child receives the proper nutritional supplementation for optimal wellness.

In the meantime, give yourself a break as a parent. Congratulate yourself for being proactive regarding your child’s healthcare! To celebrate, have a piece of fruit - just be sure to peel it if it's not organic.

Marci Terry